I don't want the new me...: Uuuugh….ever... - My MSAA Community

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I don't want the new me...

Bkboo profile image
14 Replies

Uuuugh….ever have those days? I was always such a busy bee, a social butter fly, taught US history, martial arts, dance and aerobics! Pffft tired me? whats that? Now I go to bed at 7pm and up ay 4? Huh who are you? From Los Angeles (grew up in Cali) to Tennessee (born in TN) …..loved LOVED did I say Loooooved to workout, be PHYSICALLY active! Now I run to get exercise um when I have the energy....I walk pfft.....And take care of an elderly man for a few hours. Heads spinning....who the heck are you??? Grrrrrrrrrrr...hard to sort out what to do???? boy things have changed....

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Bkboo profile image
Bkboo
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14 Replies
pamgarner profile image
pamgarner

I think that is one of the hardest part of this disease,I mourn for the person I was and mourn for the person of what was going to be of my future.I keep telling myself there are so many people off worse than me.I can still drive ,walking is iffy at time,fatique is unreal,but I am still going,not like I want, but just different,Thank goodness everyday is different!

Bkboo profile image
Bkboo in reply to pamgarner

still mourning the loss..and figuring out how to change, not easy and not there or haven't figured it out yet...have good days and bad days ya know...

pamgarner profile image
pamgarner in reply to Bkboo

I think if we can figure out how to work this disease we have a new talent! and as far as cognitive problems,bah-humbug! We have to figure out how to "do" this new world of ours,we are smarter than we give ourselves credit for,it still is very difficult.are you kidding, we are smarter that ALOT of the public......all I can say about that is, duhhh!

greaterexp profile image
greaterexp

With MS, we are constantly being challenged to adapt. I'm not sure I'll ever really figure it out, but I am getting a little better at understanding my particular roller coaster. I'd rather get off of the roller coaster, but this group has helped me adapt much more easily than I thought I could. I hope things level off for you, and the strength you have in reserve will shine through when you need it most.

falalalala profile image
falalalala in reply to greaterexp

The constant challenge can be tiring but if you can handle MS, you can handle anything.:)

Bkboo profile image
Bkboo in reply to greaterexp

the challenge is daunting to say the least.

carolek572 profile image
carolek572CommunityAmbassador

If you want to remain active, Bkboo , take a look on YouTube, and search for MS Gym Trevor Wiken. These exercises are all free, and specifically tailored for individuals with 'ms'. :-D

Bkboo profile image
Bkboo in reply to carolek572

Im actually pretty active compared to most people even without MS. I will check out the gym but like to be outside and I like to sweat :)

carolek572 profile image
carolek572CommunityAmbassador in reply to Bkboo

I understand. Be good to yourself, Bkboo and Keep Smiling! :-D

mountainart profile image
mountainart

I totally get it. I was a dancer, my life was dance in the 1980s. After an injury I still kept going as much as I could, but after diagnosis in 2001, the most I can do is my exercise bike and that's not regularly. I hear you, hope you're doing okay :)

Bkboo profile image
Bkboo in reply to mountainart

what kind of dance? and 80s I was in NY!

mountainart profile image
mountainart in reply to Bkboo

I was in NYC in the 80s, I danced at Alvin Ailey American Dance Center :) Jazz, modern and ballet!

Bkboo profile image
Bkboo in reply to mountainart

Awesome, I took classes with Frank Hatchet and Phil Black...

Bkboo profile image
Bkboo in reply to Bkboo

Jazz and some ballet. Later, it was hip hop (90s) which I loved.

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