Be active and inquiring with your health each and everyday, forever more. I love Amazon but a good hat shop should do the job. Buy yourself a Sherlock Holmes hat, and a silly yellow construction workers helmet. Put them on your head, one at a time of course.
“YOU” must research Relapsing Remitting ms(RRms) like your life depends upon it. Not longevity but quality of life. Remember we are always aiming for that wedding in thirty years time. If something helps for today, bonus but think long term. Now the Sherlock Holmes hat is great for your research and sleuthing. Study your very own RRms like it is a crime scene. Learn everything about it and when “YOU” know it all start again. Analyse everything about the drugs that “YOU” take their possible side effects. If somebody tells “YOU” something or “YOU” read something assume they are lying, including me(I am not but I may be wrong so check out what I say). Get a second or third opinion even a fourth if need be. When I spend money at the Neurologist(Neuro) I already know what I want him to tell me. I want his suggestions and his second opinion. I already know what I can and should do. I do not like surprises. I had one once and look where it got me, a chronic lifelong incurable illness. No more. I will do my research first and look for all the possible answers.
When it comes time to take my medicine I used to put on my yellow construction helmet. The childrens song “Bob the Builder” was big when I first started my RRms journey. So on went my yellow helmet the song went on and my pants went down and the needle of Beta 1 b went in. I made it a game, I did not take it all that seriously. Otherwise it is just far to depressing in my opinion. Look around yourself about ways that “YOU” can make your condition more bearable. Less of a dreaded task. wear your hat, play your song make up ways to make things easier.
This is a lifelong incurable condition. “YOU” maybe having needles for the rest of your long life. Why make it a relentless never-ending chore. Uphill carrying g a heavy stone. No, not for me, I will play my song and dance a jig, very badly, but I will dance.
I keep telling “YOU” and myself that this is lifelong incurable and progressive but I will find away to enjoy it. Perhaps not enjoy so much as except and do my best to make that heavy rock lighter and make it work for me, why do “YOU” not do the same. Start looking at things in a different way. It takes time, but all good things do. This is not a two aspirin and a nap condition. This requires a little effort, but not so much that we can not cope with it.
Royce (the tortured writer)
Writing hat off, lounging around the house hat on
Why tracking your symptoms can make you feel worse
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