Disease Modifying Therapy (DMT) is “NOT” a cure. Actually it is a treatment. Some of them are better than others, but “YOU” decide what measuring stick “YOU” are going to use and then decide which is good for “YOU”. There are several ways to take them and again it is your choice. There are lots of choices in this disease, get used to it and start making choices that suit “YOU”. Do not just let some Neuro, (neurologist) family member decide what “YOU” will take. It is your body and your condition. In twenty years time they will be comfortably retired and “YOU” will still be living your ms life. Make decisions that suit “YOU” and not somebody else. There is loneliness and heartbreak in this illness, not everybody around us is able to handle it. We all have the illness, we have no choice but “WE” all can handle it. At times it is scary frustrating humiliating, but that is the lot of a person with a chronic progressive disabling disease.
Yes, there are certainly many negative things, but there are positives, actually very positive. I would never have met she who must be obeyed, I would never have not rekindled my closeness with my mother if I had not gotten sick. I would not have found out that I can mostly cope with injections, I would have not known that I can walk out of a pizza bar in only my underwear (protective of course). I would never have known any of these things. I actually learned that it is really possible to be heterosexual and close friends with a woman. Tell me that in my early twenties and I would have just laughed at “YOU”. Do “YOU” see feel understand, there is so much more to this illness than disability?
“YOU” can achieve, “YOU” can still have hopes and dreams. Do not let this condition shut “YOU” away hold “YOU” back. There is so much that “YOU” can achieve, “YOU” just have to open your eyes look around then make a decision and follow through with it, to the best of your ability. Of course if plan A does not work out move on to plan B C…..Q. I have taken three different medicines and had plans to many to count but I have always kept myself moving. Forever forward to the next adventure, never sitting in a dark corner crying pitying myself and my lot in life. I believe I may have chosen this for a purpose, I am not sure what, or that I am doing the right thing. I do not believe that I am just here to suffer and use resources. No, I like “YOU” have a purpose whatever that might be, maybe just to bring a smile to somebodies face on a dark stormy night. I am good with that.
Royce
Take your medicine and live your ms life
