Ocrevus co pay program

[jkdavid99]

Hello all

I had my first full ocrevus on Match 15th. After being denied 3 times from my insurance i was given the drug for free. I was also enrolled in the co pay program. I have been on the phone every week trying to get funds for the card i was issued. Every time i call i need to get them something else. Apparently my insurance coded Ocrevus chemotherapy. My insurance just has to put the ocrevus code of J2350 on its bill. If they cant or wont they wont put funds on my card. It is so frustrating. It makes me so upset i sometimes just want to give up. I get frustrated i cry and then get angry at the person i am talking to and that wont help. Has anyone had this happen on ocrevus?

On another note, i have had a few pity parties lately. I used to make $100,000 a year, great job, just built a house on 3.5 acres and now i am on my Long term disability from my job. But i am still getting paid just not as much. Although I cant complain. I feel worthless and sad. What if my Long term ends then what? My company is ending my insurance so now i have to go on Cobra for $600 a month. Husband will put me on his insurance but again i feel worthless. This is not who i used to be. Sorry for the vent and any advice would be appreciated. i know it is alot. So thanks for listening.

Jenny

[Juleigh21]

I get my 2nd half of my first dose on Tuesday. Is your patient navigator at ocrevus any help? Is she aware of all the stress you’re under with the insurance problem? Is there any way you could visit the insurance company and speak with a supervisor? (I know that’s probably a long shot) What about your HR director at work? I’m sorry you’ve been so bothered by all this.

It will be 3 years in November since I was forced out of work. I ran out of everything including FMLA. I use to have my entire family on my insurance. Now I’m on my husbands. I remember that feeling of worthlessness I experienced. It doesn’t bother me any more. There were a lot of tears shed then though. Now I spend everyday battling this monster. So many people I meet today are surprised to hear I have MS. That’s b/c I’m at home when the monster is roaring. Focus on battling the monster! We aren’t ever worthless. We’re amazing fighters!!! Good luck dear Jenny. You’re amazing in your fight!

[rjoneslaw]

I have called O to get on patient navigator and I have gotten the run around from them. Finally my dr had to step in.

Go head and vent

[ahrogers]

I guess I am lucky because there is someone at my neurologist office that follows up after my infusion to send all required info in for processing. It does take over a month after my infusion because we have to wait for insurance company to issue the itemized bill with how much I am responsible to pay. My deductible is $5600/yr and they paid $5500.

I am at the point that I see I am not going to be able to work too much longer. My husband has had jobs without insurance but recognized he needed to get one that provides insurance. He just changed jobs last month but it is quite pricey to add me to his insurance. I worry about what will happen too. Thankfully my husband is very supportive. I am just hoping to get some debt paid off before I can't work.

I think you would qualify for social security disability if/when the long term disability ends. At that point I think you also qualify for Medicare.

I hope you get this resolved soon!