So my neuro finally approved my second round of Ocrevus (the 1st full one) in early April. My blood tests are now acceptable to allow treatment. This is now 10+ months after the first 2 1/2 doses.
Because I started a new job, we had to get insurance approval again. Finally got a call from the doctor's office saying that United Healthcare will approve it if done outside a hospital infusion center. (this took 4 weeks compared to the 5 days it took with Blue Shield of California). So be patient.
Now I have to wait for the paperwork to be in place before scheduling.
I am so lucky to be doing great. Crossing my fingers that it lasts until I get to the infusion.
Written by
anaishunter
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United Health Care has disallowed hospital based infusions. They will approve a non hospital based infusion center.
Your best option is a rheumatology infusion site. That is what I had to do for my last dose.
What I noticed as the difference was they gave me oral tylenol and benadryl versus infusion benadryl. They gave me a 30 minute dose of steroids. Hospital based infusions add the steroid to the Ocrevus which is then considered a compound medication which greatly increases the cost.
I was delayed on a dose a year ago when I moved to another state and had to wait first for my insurance with my new job to kick in and then get in with a PCP to be referred to a neuro. It took 3 months to get in to the neuro but was scheduled for infusion a month later. I have always gotten it at the neuro office, originally on a clinical trial. I was delayed a little over 3 months and was fine.
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OCREVUS (finally)
Experience with First Round of Ocrevus
Hello family, Ocrevus infusion number four just finished!
