Saturday morning and my little brother (actually taller than me) has just left with his son and his wife for there journey out west and up north for her Aunts birthday later this month. Not sure exactly how old she will be but she is close to one hundred. Sweet old lady and I quite like her. We are not going as the trip will kill Mums back, driving or flying. She has fused vertebrae in her back and arthritis. A little more than just old age, she has had a crooked spine since birth. Back in the old days in the West Indies (Caribbean) there was not the treatment available now so not starting early has cost her in old age. Something like “YOU” not doing anything with your Disease Modifying Therapy (DMT). She had to wait, years go by she suffers. Procrastinate and do not take a DMT and “YOU” will suffer just the same. Not your herbalist your chiropractor your Neurologist (NEURO) only “YOU” my friend, YOU. Think about it and read those few lines again, maybe one more time. Do “YOU” feel I am nagging “YOU”, then “YOU” get the point because I am.
Anyway I have thought about it and realised that I really do like that family. Unusual for me, being cantankerous, but I really did enjoyed their short visit. Human interaction is really a very good thing. I could not and did not want to do some of the things they wanted to do but it was good just the same. Hearing different opinions and getting different techniques to do things was fun. Having somebody not one hundred percent aware of my weirdness gave me something to adjust to. Make me change my ways slightly for a day or two. That was rather inconvenient but good. I need to get out of the box I put myself into sometimes. A little change every now and again is a good thing. It helps me be able to adjust to any ms issues that do turn up, and believe me even after twenty years I can still can get surprised. Never a dull moment with a chronic incurable condition. Chronic incurable and disabling it very well is, but “YOU” most certainly can adapt and modify your behaviour to get through your many years.
Relapsing Remitting ms (RRms) may be chronic, it may take a lot from “YOU” but it is able to be managed. Managed with skill and determination in ways that “YOU” never expected but still can be done. I might suggest that “YOU” calm yourself perhaps read the newly diagnosed section on this site, and then stand straight square your shoulders look straight ahead and take your first step. One of many that “YOU” will take on your ms life journey. This is a very doable disease and does not need to be disabling today in 2019. There are medicines and techniques, never to cure “YOU” but to keep “YOU” functional. If anybody says they can cure “YOU” they are lying. There is no cure, we all have this forever. I do not know why we have it, nobody even knows that. I like the reason, because it is a human disease and I am human. Therefore I have it, do not worry one day “YOU” will understand this.
Today this disease is very doable. “YOU” can live with it and live well. Do not despair there is a lot of life available for “YOU” as a person living with ms.
Royce
make your future bright, very bright
