You have RRms now: “YOU” have relapsing... - My MSAA Community

My MSAA Community

9,211 members20,960 posts

You have RRms now

RoyceNewton profile image
1 Reply

“YOU” have relapsing Remitting multiple sclerosis (RRms) now. It has been confirmed by your Neurologist (Neuro) all the tests that can be done have been done. Magnetic Resonance Imaging (MRI) Evoked potentials, audio visual and Somato (nerve I think) there is nothing left to do. Have a good cry, do not kick anything or anybody, “YOU” may have to apologise for doing that later. No. now is the time to put your head down and start getting organised. I like Dr Aaron Boster as a source of wisdom and information. Google him and learn something. He has a four for four technique that he likes “YOU” to follow. I do not find fault in it though I do as somebody who has RRms suggest a few more steps.

Wear protective underwear. Ladies “YOU” protect yourself monthly from embarrassment, do it now because your bladder\bowel is not what it used to be. Gentleman walking around in wet pants, front or back is no fun. Your choice on what “YOU” feel “YOU” like to do. For men I recommend Depends they have served me well over the years and Amazon is a reliable discrete well priced source.

Make records, mris all tests that “YOU” take, your day to day diary. This will get less and less as years pass by but until “YOU” know yourself this is a good start. Things that I said about the ex-wife years ago I have deleted now but it was good to get it off my chest way back when. I honestly do not care about her and how she treated me twenty years ago. It is her karma not mine, actually how anybody ever treats me is their karma. I just have to live my many days the best I can and learn everything that is out there available to me. I care about my karma, my path not theirs. I recommend this for “YOU” as well. Relax it is not likely that “YOU” will become an enlightened guru in three days. RRms is lifelong, it takes time to comprehend and learn to live well with. Secret here, it is ever changing, “YOU” may think “YOU” are done and “YOU” have it all together. RRms is ever-changing, it is progressive. There is no cure, there are Disease Modifying Treatments (DMT) but “YOU” like me will die with this illness, not from it, not today. But with it, learn to accept that.

It is still VERY possible to have a LONG and HAPPY life. With healthy strong children if “YOU? so choose. All that is asked of “YOU” is to make a decision to have that and live in away that lets “YOU get it.

Royce

It is always your choice, so choose well have Relapsing Remitting multiple sclerosis (RRms) now. Relax rest assured you will live along time

Written by
RoyceNewton profile image
RoyceNewton
To view profiles and participate in discussions please or .
Read more about...
1 Reply
Childof1God profile image
Childof1God

Nice post! I really enjoyed reading it and your experience when hearing the dreadful news. You are right, this is not the end. I think it's just the beginning of a new life, a life of uncertain symptom changes (good and bad) We just need to take care of US. I had all the tests and formally diagnosed with RRM in 2010 just after getting married. I'm taking Tysabri infusions now which agree with me and elevated some of the disability I had before.

Be Happy and Otherwise Healthy!

Not what you're looking for?

You may also like...

Crazy week for me and the hubby...

This week started off fairly well, only for it to start going downhill from Wednesday. I woke up...

Brain Fog and Words

Do any of you have a very hard time with finding the exact word you want to use? You know, like the...

Restless Legs Syndrome

I have severe Restless Leg Syndrome and I don't know what to do anymore. I tell my MS doctor and...

Kesimpta Question

I alternate which leg I do my Kesimpta injection on, and this month (month 6) was my left leg's...

Happy 4th MSers.

Havent been on,,,A dear friend had said when i stated i wrote poetry when it wasnt so bad....she...