Exercise : Hi everyone hope all is well... - My MSAA Community

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Exercise

luvhair profile image
26 Replies

Hi everyone hope all is well...i had to cut way down on the step walkn research program..i know all benefits of exercise with ms..but for me it really causes alot more problems..im still gonna try n do 2ooo steps a day till my body calms down..how else is everyone on doing exercise is it good or bad for you???

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luvhair profile image
luvhair
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26 Replies
carolek572 profile image
carolek572CommunityAmbassador

luvhair Exercise is always good for you ~ in moderation. In my case, I try to do as much as I can without causing other issues. I am happy that you're trying to find that 'sweet spot' in finding what is the limit for you.

Keep Smiling,

Carole :-D

luvhair profile image
luvhair in reply to carolek572

Exactly the answer i need xo

rjoneslaw profile image
rjoneslaw

I have to admit I have slaked off this past month.

luvhair profile image
luvhair in reply to rjoneslaw

Thts easy to do..im tryin as much as possible xo

Bodega1939 profile image
Bodega1939

I do sympathize so much. Walking around and doing things in my house is one thing. I can quit when I need to and resume later. However, the PT program I was in almost killed me. I am good for a bit then it's all down hill with a lengthy recovery. What is this problem all about? Does anyone know for sure?

luvhair profile image
luvhair in reply to Bodega1939

I agree i don't u understand it..i dont think anyone has an answer

falalalala profile image
falalalala

That's too bad you had to cut back but you gotta do what you gotta do to feel well.

I have found that if I miss a few days it is that much harder to get moving again. It has clear benefits for me and I feel better after having worked out even if I have to rest a bit after.

The heat is my only real issue/excuse. In the summer I have to use a fan so I won't drop dead.🤣

luvhair profile image
luvhair in reply to falalalala

Yea me 2 the heat..yea ive gotta cut back..i agree doing the steps but over 9000 a day tht is just to much for me on top of keep ing my house organized n stuffxo

falalalala profile image
falalalala in reply to luvhair

I get that!

:)

luvhair profile image
luvhair in reply to falalalala

Oh boy yes

BigMar7 profile image
BigMar7

I have a fitbit and when I started out, I could barely do 1000 steps. Now on good days I can do almost 3000. You have to listen to your body I’ve decided. Some days are good, other days not so good. 😀🙃❤️

luvhair profile image
luvhair in reply to BigMar7

I tottally get that for sure..tgts wht i was to tell tht research program..guess they just dont get it xo

Raingrrl profile image
Raingrrl

I try to do some form of exercise every day but also listen to my body so I don’t push it. I have a fitbit to track my steps. On good days I can reach 5000 steps; on a not-so-good day I just do what I can. I do feel better in general the more active I am. And like falalalala , if I miss a few days, it is harder to get moving again. I’m both heat and cold sensitive so I adjust what I do and where depending on the weather.

luvhair profile image
luvhair in reply to Raingrrl

Yes agree me also xo

ahrogers profile image
ahrogers

I just got started up again. I have this video I love because it is broken down into 5 minute segments. There is warm up and cardio then some strength training exercises for arms, legs, but and abs as well as a stretch segment. So far I am only doing the warm up and cardio then the stretch. It is definitely helping my right sided weakness. I am going to pick up some dumbbells this weekend and add the arm segment next week as my arms seem to be really weak right now.

I don't think you should be discouraged by not being able to exercise more. Be encouraged that you continue to exercise in spite of this. Hopefully over time it will get better. That is what I am hoping for! I know I will never be back to my pre ms level but doing the best I can with what I have now is all I am looking for at this point.

❤ Annette

luvhair profile image
luvhair in reply to ahrogers

Love it..yes i agree..im just not doing 4 miles a day i was doing light yoga really good one streamin from amaxon

pamgarner profile image
pamgarner

when I went to physical therapy ,they told me "as with everything else with ms. there is a fine line of not over doing it"

luvhair profile image
luvhair in reply to pamgarner

Exactly

MarkUpnorth profile image
MarkUpnorth

I too, when I started, was lucky to do a 1000 steps. And that was a real struggle. Surely I had been well beyond that all my life, but after being forced to retire due to M.S., I got worse. Much worse. Spent a couple years in a comatose like state with really bad brain fog according to my neuro's. But, I remember (amazingly?) the determination to walk with my cheap pedometer someone gave me. I pushed myself, day after day. Using a cane to not only balance, but help propel me on my walks. It took over a year till I could get 10K steps. Been pushing myself for years now. Still do, but now 10K is almost easy. 20K, well that's a workout walking that I have to push myself.

My advice. Do what you can do, comfortably??? No Push Yourself (I know it was really hard). But don't give up. Month by month, up your goal, just a little bit. But when you're ready to collapse, and I did a handful of times originally, mind over body! I wear a fitness tracker around my ankle every single day, just like a convict on house arrest? Love it!

Lost my cane after 5-1/2 years of needing one. Am I normal steady? No, but it's a process I guess. From wall walker and falling, to hanging up the canes. Got a power driven lawn mower? It's my power walker! I get the grass cut at the same time!

luvhair profile image
luvhair in reply to MarkUpnorth

Wow you are really walkn it..o was feelin pretty good then hit me again..idk..im alone in this town..nevrr have lived alone i think if i had more support n friend n mite help more idk..im fighting 7 autoimmune diseases..so yea its hard on top of wht this has done to me mentally..xo

MarkUpnorth profile image
MarkUpnorth

Only 7? OMG! So sorry. The diet I'm following, (Wahl's/Paleo/Hunter Gatherer) is believed by many, to work for all auto-immune diseases. I remember reading how scientists or ? went looking for, and going to remote parts of the world not yet affected by modern food, and found as the story goes, void of all auto-immune diseases. No tooth brushes, no cavities. A whole lot like that. Can't hurt to look into it???

luvhair profile image
luvhair in reply to MarkUpnorth

Ive heard tht been trying to get ahold of tht wahls cookbook...xo

MarkUpnorth profile image
MarkUpnorth in reply to luvhair

??? No, I've got enough of them, thanks. Started with Managing my Mitochondria,..but the Wahl's Protocol is better.

luvhair profile image
luvhair in reply to MarkUpnorth

Ok

7409 profile image
7409

I love my stationary bike. I cycled 1,029 2 years ago, and 1,210 last year and on track to do 1,300 by year end. It is one of a few things I can do unassisted. I have learned to stay cool and not over do it, once I discovered Myohealth (Amino Acid) by Trivita my recovery is much better after a 30 min. ride. Also cycling helps with my spacity issues. Overall, I know my limits.

luvhair profile image
luvhair in reply to 7409

Great idea

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