RRms (Relapsing Remitting me) is challenging. Very challenging at times but no more than that. Yes sometimes it is painful, let me tell “YOU” about pain one day. It is confusing frustrating, annoying and disheartening, But without a doubt it is Doable. I understand your fear at first, even your fear years later. I have not noticed mine go totally away and it has been over twenty years. With that in mind may I make a suggestion. At this point “YOU” have done your research. “YOU” know this is incurable, “YOU” know that Disease Modifying Therapy (DMT) is your best bet for staying standing longer and “YOU” are making efforts to obtain and start one. “YOU” wisely understand that not every medicine works for every person so if “YOU” have to change “YOU” are willing to. “YOU” know never to stop unless medically “YOU” have to, just never just on a whim. “YOU” have got your head around this being a lifelong condition and what that means to “YOU” as an individual.
Do “YOU” see there are many things to do. We have not even mentioned exercise, diet, smoking (NAUGHTY NAUGHTY) alcohol sex relationships. Yes, there is a lot, are “YOU” overwhelmed, “YOU” very well might be. This is about the time that “YOU” might stop, tale a look around and give yourself time to pull yourself together. When “YOU” are at least partly pulled together just stop. Smell the roses, pat your dog and take a deep breath.as I said this is a lifelong disease. “YOU” are taking your DMT and the other parts will fall into place as “YOU” progress. Cut yourself a lot of slack. Just do nothing and contemplate your navel (belly button) If “YOU are better than me, meditate, I have difficulty slowing my mind so no meditation I think. No just relax, it is going to be alright. RRms did not happen in a day, it won’t be coped with and managed in a day. Just slow down, this illness is doable give yourself time to do it.
Having said that RRms is very tricksy. “YOU” may think that “YOU have all your ducks in a row and that everything should now go along like clockwork. I am sorry RRms is not like that. “YOU” should have a grasp of how large your Central Nervous System (CNS) is,(Amazon picture chart) “YOU” can say wow big. That is what your RRms gets to wreck havoc in, no matter how perfectly “YOU” do things. It will go astray and throw “YOU” curve balls. It is normal relax, expect it and adapt when it rolls over “YOU”, it is a condition of our illness. Learn to adapt, adapt again and keep moving along your very long ms life path, but most of all relax a little and forgive yourself if “YOU” need to. “YOU” are okay, “YOU” can do this illness and do it well. Relax a little and start, or keep doing what “YOU” must to achieve your goals. Take your time and be gentle to “YOU”.
Royce
Believe in yourself