Put this idea out of your head. it is to... - My MSAA Community

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Put this idea out of your head. it is to hard for me

RoyceNewton profile image
5 Replies

Put this idea out of your head right now. Never ever think this again. “YOU CAN" cope with ms, it is not to hard it does demand (it does not ask politely) much of “YOU”. Relapsing Remitting ms (RRms) takes from “YOU”. It generally does not give “YOU” anything BUT it can be coped with, managed, manipulated. I generally do not like fought battled or conquered. It is an incurable chronic progressive illness. With treatments, Disease Modifying Therapies (DMT) but no cure. Likely no cure for a long time into the future but who knows. Even if a cure was found today all the trials, stage 1 2 and 3 that it would have to go through will take years.

Your only thought my dear sisters and brothers must be how to cope with and live with this condition. To avoid that cold dark corner and the endless weeping and despair. This is an entirely doable disease. There are techniques that can be easily learned and followed. Start wearing protective underwear in public, wether “YOU” feel “YOU” need it or not. Take a Disease Modifying Therapy (DMT), exercise, eat healthy, drink less, stop smoking. Search for your miracle cure, we all do, it is okay. A hint, relax there is not one no matter that “YOU” might want one, or how much “YOU” might spend. No, just relax this is long term and incurable. it will not be solved in a week a month or even decades. Your RRms is with “YOU” and me all of us, for life, a very long life I plan, so a long time.

There are ups and downs. Mostly downs but not to steep hopefully, but most certainly downs. Learn to accept and understand this. There is no need to fear it. When “YOU” have learned about this disease snd yourself, “YOU” should have an idea about what “YOU” can and can not do. Honestly there is not a log that “YOU” can not do. It just takes a little more time practice, perseverance and perhaps some adapting.

Get into the mindset of having to change often and that there is pain and loss. Of friends family function and “YOU” will be on your long ms journey. It is not all bad. Do not despair or weep. This a very long journey, lifelong. It takes time to come to terms with it and it likes to keep changing, but it is DOABLE and I know that “YOU” are special and that “YOU” can do it. Believe in yourself as I believe in “YOU” Together we can DO this “YOU” are not alone “YOU are our ms family.

Royce

Your ms brother

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RoyceNewton
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5 Replies
Jesmcd2 profile image
Jesmcd2CommunityAmbassador

Missed you writings RoyceNewton ☺️🤗💕

RoyceNewton profile image
RoyceNewton in reply toJesmcd2

glad you are back and okay

RoseySawyer profile image
RoseySawyer

So true! ☺️❤️🌹

carolek572 profile image
carolek572CommunityAmbassador

Thank you for this post and words of encouragement, Royce. I needed it :-D

RoyceNewton profile image
RoyceNewton

always my pleasure

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