Ocrevus question

[Jesmcd2]

As you know I had my second half of my 1st dose last Wednesday. And I'm exhausted! Still! Like MS fatigue tired. Like don't move me, because I can't tired!

I still take my puppers for a walk around the block. But man!

Does anyone else get this tired after there infusion? And how long will it was?

🤗💕☺️🦈

Jes🌠

[erash]

🙁 I get tired the day of the infusion. Likely due to the Benadryl and from doing nothing for 6 hrs. But I’m usually fine by late the next day.

Are you sleeping ok at night? I think some have had insomnia and that can certainly make you fatigued during the day.

Sending you some energy ⚡️

[Jesmcd2 CommunityAmbassador in reply to erash]

I pass out at night! Sleeping 11 to 12 hrs. It's been unreal! Almost relaspe unreal. And I'm not liking it! No fever, no other symptoms either. 🤗💕🌠

[erash in reply to Jesmcd2]

So sorry

Maybe call neuro tomorrow

Could b relapse 🤷🏻‍♀️

Everyone’s responses so different…

[ahrogers]

I am a little more tired for about a week and my lymph nodes in my neck are little tender. After a week it goes back to baseline.

[Jesmcd2 CommunityAmbassador in reply to ahrogers]

TY ahrogers I am feeling a bit better today, thank goodness! But it's only 830 in the morning!😂 But you give me hope!🤗💕

J🌠

[ahrogers in reply to Jesmcd2]

Hang in there 😁

[Jesmcd2 CommunityAmbassador in reply to ahrogers]

Always do! You too! 🤗💕🌠

[JTZES]

Jes,

You may have picked up a small virus or mild infection. I'm 3 weeks out of my 3rd full dose. Ocrevus lowers your immune system making you more substantial to catch those things. I caught a stomach bug for 2 days and slept near 16 hrs a day.

[Jesmcd2 CommunityAmbassador in reply to JTZES]

How long does it lower your immune system JTZES ? I have been very careful about staying away from anyone and everyone sick! 🤣

I hope you are feeling better now?!🤔 🤗💕

J🌠🦈

[carolek572 CommunityAmbassador]

I haven't noticed my energy being affected but everyone reacts differently. How are you doing now?

[Jesmcd2 CommunityAmbassador in reply to carolek572]

More like myself, how that is I'm not sure 🤣 🤗 💕 how are you carolek572 ?

J🌠🦈

[carolek572 CommunityAmbassador in reply to Jesmcd2]

Doing okay. I have had some issues with allergies lately. I never had allergies before so this is new to me. I am feeling better today though. I am happy that you are feeling better as well.

[nicoly3467]

Hi Jes-yes, I recall the day of Tx and about 3 days later after the infusion it always was more rough for me with more fatigue. Then it got better. I think it’s the medicine (military) kicking in to fight the bad guys.

[Jesmcd2 CommunityAmbassador in reply to nicoly3467]

I like that nicoly3467 ☺️ they say your body heals better and faster when sleeping! So I will take it! TY! 🤗💕

J🌠🦈