Just waiting

[positiveness]

two more days from now will make it two months since my first dose of ocrevus. Time sure does go by quickly. I heard it may take four to five months before I start seeing a difference with the medication.

[jimeka]

I think it depends on each individual, and how bad the ms was before you started it. Hope you have an improvement. Blessings Jimeka 🦋

[positiveness in reply to jimeka]

True! Also, thank you so much for replying and your hopes

[positiveness in reply to positiveness]

I guess my MS is pretty bad when you have to lift your leg to get to the next step. That's probably why it's taking so long to see improvements. I also have to lift my leg up getting in the car and out of the car.

[jimeka in reply to positiveness]

I have read that Ocrevus doesn’t offer a cure, it just halts progression, so I guess you are not supposed to get any worse. My ms nurse has just put my name forward for Ocrevus as it has just been passed in the U.K. for PPMS. 😊

[Ali_B62 in reply to jimeka]

I thought I had read that news somewhere, thank you for confirming it. I can now encourage my friend to see her neuro.

[positiveness in reply to jimeka]

good luck and I hope the best for you.

[jimeka in reply to positiveness]

Thank you and ditto. 🤗

[pamgarner]

I was hoping to gain back some things I have lost,I don't think I have but that doesn't mean you won't,but no new lesions and I am satisfied with that for now

[Iona60]

My neurologist told me not to expect any positive results (if any) from Ocrevus until after the first full dose. Thankfully, I did start to notice a difference after a year. Hope that to see some positive results soon.

[IFwczs]

positiveness, I have to lift my leg with my hands to get in and out of the car as well.

Please read my post on Ocrevus and replies (especially that of greater exp) here:

healthunlocked.com/mymsaa/p...

[Redskinfan1977]

Good luck with the new medication.

[carolek572 CommunityAmbassador]

positiveness I am on Ocrevus, and I have seen improvements in my balance and gait. I also have noticed better mental clarity. This is what I have noticed thus far. I was told that positive benefits might not be apparent until you are on Ocrevus for 1 1/2 to two years.

Everyone is unique in their experiences, so be patient, and

Be Good to Yourself,

Carole

[falalalala in reply to carolek572]

How long did it take for you to notice the improvements you listed?

[carolek572 CommunityAmbassador in reply to falalalala]

Mental clarity was soon after my first dose. I credit that to getting off of previous DMT. My balance and gait improvements were noted at my neuro visit, after my second dose. I continue to see better balance and gait. Now, I still cannot run or walk unassisted. I have no disease progression or new lesions, according to my neuro, but that was the case with my prior DMT's as well.

[falalalala in reply to carolek572]

Slowing/stopping progression= time to heal with Ocrevus?

[carolek572 CommunityAmbassador in reply to falalalala]

I think so. My neuro is pleased with my results with using Ocrevus. She measures my responses with walking. balance, coordination. The blood work to measure my b-cells is done prior to all infusions and they indicate that Ocrevus is doing its intended job. So, slowing/stopping progression with Ocrevus is a good thing.

[falalalala in reply to carolek572]

I am happy you are getting good results!

Thanks for the info

[positiveness in reply to carolek572]

Thank you so much for sharing that information with me. I greatly appreciate it.

[carolek572 CommunityAmbassador in reply to positiveness]

I hope that you see positive benefits with Ocrevus as well, and soon.

[kycmary]

Sorry I just saw your post, I had my 1st dose of Ocrevus in Dec I started noticing things within in a few days. I had a little more energy, my vision was better & I could do better in my coordination. Now I'm down to my last week & a half & waiting for the infusion. Mary

[positiveness]

Nice to know. And do you still feel a positive difference within 6 months of waiting for your next infusion?