I am just baffled...

[Amore55]

I must ask if anyone else has experienced what I am going through. As I have mentioned, I have had to start using an electric wheelchair. At first, a couple months ago, it was only in the evening, then shortly thereafter it became afternoons and evenings. Now I am struggling pretty much all the time. My ability to walk is going away so seemingly quickly. Have any of you experienced a rapid loss like this? I know I have been very fortunate, and kind of knew this could happen, but thought I could get a few more years. Also, my level of pain continues to increase, when I just did not think it possibly could. Any thoughts or your experiences? Kelly

[kdali]

I hope someone with your experience replies soon. I’m so sorry Kelly. I’m glad your puppers got a new home before you became weaker...but perhaps your heartache from having to find them a home and also not being there to love anymore is increasing your MS misery 🤔

That’s a traumatic loss for you.

[Amore55 in reply to kdali]

Oh, that is another thing. The wonderful, perfect lady called me after a week, said Harley, Bichon, had adapted beautifully. Just give him some love, food, and he is wonderful. But Maddie, my little, beautiful cairn, was a different, stubborn story. She refused to eat, wanted to be outside ALL day, would not sleep anywhere near her and always barked! Not my Maddie at all. She lost a pound and a half in one week. I got a call that the vet said she was not going to adjust. I picked them up Wednesday afternoon. They would rather be with me in a one bedroom apartment, than a big house with a huge yard.

Who knows? I have hired someone in my building that I am good friends with to take them out twice in the afternoon, once at 4 again at 7. It is VERY helpful.

[kdali in reply to Amore55]

Oh wow, what a rollercoaster! 😱

[jimeka]

I have to agree with kdali , maybe the heartache and stress of what you are going through may have caused your symptoms to get worse. I am sorry Kelly, can the pain clinic not help in any way? 🤗

[rjoneslaw]

sorry to hear what's happening 2 u

[Amore55 in reply to rjoneslaw]

How are you doing as day to Big Bang happens? Know you understand!🙃

[rjoneslaw in reply to Amore55]

I'm doing well

[Mermaidia11]

Hi Kelly @Amore55

Yes I’m with you

I have a little electric scooter upstairs and down

They make life easier and more efficient, -but then you are still to fatigued to exercise, which I think was my folly....

So I would suggest weight bearing on your legs as much as u can manage, even if is hanging off The side of the bed.

Regular stretching will keep your muscles from seizing up and hurting

Your heart rate needs to be elevated regularly as well to keep the red and white blood cells zooming about

It’s arduous and much easier to not do, but essential unfortunately

Adapting and change is irritating, but what we do best eh?

Good luck and Godspeed Kels

[Amore55 in reply to Mermaidia11]

You are always very helpful! I stretch everyday, maybe need to do more. Try to lift one pound weights in 3 minute increments, when I can during the day. I eat “clean”, I do not get my heart rate up enough, I know...where did sex go? LOL.

Yes, adapting and change is diffuse, but I believe we are experts at it! Thank you for your kind, gentle words!

Love, Kelly xx

[Hidden]

Amore55. AKA: Jelly. (LOL 😄-that is what my stupid spell check does, when I try to type Kelly)

I am sorry 😐 for your problems you are having....

I am no expert...I know for myself, stress and lack of moving doesn’t help me.

My mind likes to wander to “negativity and what I can’t do”.....

It is a battle!

I use prayer 🙏 a lot.

Keep pressing on and tell your doctor.

Sounds like having your dog 🐶 back, will be beneficial for both of you.

Sending prayers 🙏 and positive thoughts 💭, your way.

(Coffee ☕️ hasn’t moved to my fingers yet, Lol—)

Way too much correcting my typos! 😐

[Amore55 in reply to Hidden]

That’s funny...my brothers used to call me “Kelly with a belly full of jelly” when I was a skinny little kid sister!

Thanks for good advice.

[Hidden in reply to Amore55]

Yup—-

My name is Shelley... I remember those days 😢😤😩

But I was chubby, red hair 👩🏻‍🦰 and freckles....

Welcome to the club——LOL!

[twooldcrows]

so glad you were able to find someone to help you with your babies ...it is true our babies do get attached just as much as the rest of us do to them...i bet this was what had made everything get worse so fast was for you felt so bad and missing your babies now just have to feel more positive that they are where they belong ...love and much happiness with your babies are just what you needed ...take care and to know you are very loved by them and others on here...

[Amore55 in reply to twooldcrows]

Thank you, I love everyone here and feel your love back!

[RoyceNewton]

Kelly, are you ok with yourself. Sorry this can happen to any of us with this disease. No ryhme or reason. It is easy for me to say but just try hard to relax. Let it flow in fighting it will only make it hurt more. Be at peace with yourself and smile. Always much l,ove and warmth to you.

[Amore55 in reply to RoyceNewton]

Royce, good question. I feel that I really am happy with myself. I work on giving of myself everyday. I feel good about my body image, still feel attractive, old, but attractive. I have friends, family.

I think I handle stress pretty good, but probably need to breath in deeply more, if that makes sense. Maybe meditation?

Love to you too! Kelly

[Sandydemop]

Hi Kelly, I wish I had answers for both/all of us. I do agree having the puppies around is a good thing. very therapeutic. I have been getting worse with my walking and it just makes me mad. I've been reading we have a built in negativity bias. For cave dwellers to look for danger. All we can do is try to make the most of it. Maybe keeping track of your symptoms and how much time you spend with puppies?

[mrsmike9]

I'm sorry, but not sorry, it didn't work out to give away your pups. I am sure you are happy to have them there with you. I am VERY glad you found someone who can help you with them. Stress, for me, is my biggest trigger. Lately, and I don't want political responses from this, the closer the election comes the more stressed I am. I am literally terrified of the outcome. It is really affecting my MS.

So perhaps your puppy roller coaster time is affecting you more than you think. I hope as everything settles you will feel better.

[Amore55 in reply to mrsmike9]

I agree. About the pups and especially the election. I am so very concerned. I do not believe one has ever mattered so much.

Love your recent button art! Kelly

[Jackjosh]

My balance is horrible and i bump into everything. I have to use a walker when i leave home. Most stores i use a wheel chair but i dont want to be in one im scared of that