Hitting home : This article really put... - My MSAA Community

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Hitting home

Gessika profile image
13 Replies

This article really put into words some things I’ve been feeling. I’m sure I’m not alone in it. If you haven’t signed up for The Mighty MS issue, it might be worth your consideration. Great articles on a regular basis. I’m even thinking of contributing.

themighty.com/2019/03/hidin...

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Gessika profile image
Gessika
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13 Replies
Lilith08 profile image
Lilith08

Great read and just what I needed today. I’m soon visiting old friends and dreading that all I have to talk about these days is my health “adventures.” This piece reminds me that I can keep my worlds separate—and that I need to find more “normal” things to fill out my life. Being out of the working world and lacking social connection really isn’t good....

Juliew19673 profile image
Juliew19673 in reply to Lilith08

You said it Lilith80! I hate that I do not have anything to add after "I'm good" my Neurologist asked me last time I saw him "What was the last fun thing you did?" I was perplexed. Then realized that I never do anything fun. I'm ecstatic when I go to work all day and then hit the grocery store. If thats "Fun" then great.

Gessika profile image
Gessika in reply to Lilith08

I’ve recently decided to spend more time alone in the forest that surrounds me. Sit by myself, reflect, progress, and figure out some things that I can do that will make me happy. I just drove to watch a friend do a Storytelling event in Olympia. Just getting out of town to sit my ass down..and “out”...supporting another human made me feel a part of the world without breaking the motivation bank. I need to do more of this. ❤️

Shaws10784 profile image
Shaws10784 in reply to Gessika

Remember to wear bug spray and check for ticks afterwards. Nature is beautiful and peaceful. Hope you enjoy it

Gessika profile image
Gessika in reply to Shaws10784

I live at the base of the Olympic Mountains. It’s SOOOOOO beautiful here.

Raingrrl profile image
Raingrrl in reply to Gessika

I live in Washington too. There are so many beautiful places in Washington where you can just sit and reflect. On a good weather day, there are too many choices of where to go to just hang out and feel serenity.

Jazzihorsecat profile image
Jazzihorsecat

WOW!☺ good reads, thanks for sharing Gessika!👍🌷🌸💐 Many Blessings, Jazzy🌹💜

goatgal profile image
goatgal

This does accurately describe how many of us with MS feel every day...but in thinking about how my doctors failed to listen or be even remotely curious when I tried to tell them what goes on...it is no surprise that it took close to 30 years and a major incident of unexplained weakness for me to be finally diagnosed, but I will always feel disrespected and angry with them.

Gessika profile image
Gessika in reply to goatgal

Some people never understand until they can either see it or feel it themselves. So frustrating. I got told all of the time “well, you look really good!” Like what I’m feeling shouldn’t matter because I just so happened to shower and put on a little makeup.

Raingrrl profile image
Raingrrl

Thanks for posting this! My symptoms are still mostly invisible so I too live in a dual world. It’s just easier for me this way.

Gessika profile image
Gessika in reply to Raingrrl

Fer real. Me too..wether I like it or not. Me too.

anaishunter profile image
anaishunter

thanks for sharing, I can totally relate. My MS is mine and only shared with a few good friends. Nobody else needs to know and this makes everything a lot less complicated for them and for me.

leking1 profile image
leking1

Thanks, I just joined! Being an educator all my life, I am always looking for new resources! Have a great day.

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