Ocrevus at home?

[erash]

Has anyone had their Ocrevus infusion at home? How did it go?

[kdali]

Mine are at home. The only difference is we have to arrange care for the kids, and we keep the anaphylaxis kit here as well as arrange with the pharmacy when to deliver the pump and drug.

[erash in reply to kdali]

So does the infusion nurse stay at your house?

[kdali in reply to erash]

Yes, they check vitals and change the drip rate using the same protocol as they do in the infusion center. My last one went to her car for a bit, but gave me her number to text in case I felt poorly.

[Doubled51]

Saw my neurologist Monday and he’s changing me from Gilyena to Ocrevus.

I talked to the nurse that did my iv for solumedrol last week and she said after the initial dose she would do it here at my house. If she had been here I think I would have kissed her.😁😁.

The neuros nurse sent the order in Monday so I have no idea when it will start.

Donnie

[erash in reply to Doubled51]

It will go great!

[Iona60 in reply to Doubled51]

Yay Donnie!

[hairbrain4 in reply to Doubled51]

That's great! I think you will be pleased with Ocrevus.

[jimeka]

Allen5280 had his at home I think.

[Iona60]

Wish I could get my infusions at home.

[erash in reply to Iona60]

Will insurance not permit or other reason?

[Iona60 in reply to erash]

If I remember correctly, under Medicare, if it isn't administered by a doctor, then it falls under part D and there is no limit on the out of pocket. Otherwise, it's under Part B and my $6000 out-of-pocket cap kicks in.

[erash in reply to Iona60]

Oh my

[Iona60 in reply to erash]

See what you have to look forward to.

[erash in reply to Iona60]

Good to know... Maybe it’ll change by then?

[Iona60 in reply to erash]

Maybe, but Medicare or Medicare Advantage has no out- of-pocket limits on medicines at all. At least with the Advantage plans, you can get an limit of $6000 on everything else. It's very confusing.

[goatgal]

I had solumedrol at home ten years ago but at that time it was not covered by insurance (Medicare/Anthem). It was pricey but so much easier than driving 40 miles, parking, etc.

[hairbrain4]

I didn't know they did them at home. I'm going to check with my insurance to see if they will cover it. It would sure be so much easier on me and my husband since we have to drive 100 miles to get to the closest infusion center.

[elaineinqueens]

I imagine that having the infusion at home is much less stress inducing than having to go somewhere. I am not on an infusion, but if that ever happens in the future, I doubt I could have it done at home with 2 effusive labradors and I couldn't lock them in another room for hours, they would not shut up. Hope that all who want to have home infusion will be able to do so and Happy New Year to all!