MONDAY 1 APR 2019 TIME: Time, Yes “YOU... - My MSAA Community

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MONDAY 1 APR 2019 TIME

RoyceNewton profile image
3 Replies

Time, Yes “YOU” have it. This is the beginning or perhaps the middle of a very long journey. It is never the end. There will be many ups and down. I am sorry to say to “YOU” that the, honest and realistic prognosis is that it is a downhill journey. How fast that “YOU” go downhill is a lot of your own choosing. “YOU” had no choice in getting sick, there is no rhyme or reason. There are lots of theories but no certainty anywhere. Just to help “YOU” out I will share with “YOU” the absolute honest to goodness best possible theory. Back when “YOU” were seven you ate that peach that was a little unripe and it gave “YOU” Relapsing- Remitting ms (RRms). pretty ridiculous don’t “YOU” think? Be careful there are plenty of ridiculous stories out there, generally they want your money and promise “you instant cure with no evidence. I knew I should have asked for money, maybe next time.

Yes, “YOU” do have time. Time to do some serious research on the Disease Modifying therapies (DMT) available to “YOU” on diet and exercise. Back in the day I think it took me a divorce and six or seven months to get my set together and start doing something. Over twenty years later and on my third Disease Modifying Therapy (DMT) which I take religiously at 5.55 am and 5.55pm. Actually mostly true, when I change timezones I am sure I miss a tablet every now and again. I travel to Australia and back to the United States often enough and never have thought not to take medicine or adjust for time zones. Has not affected me, and just to prove it I nearly maxed out on some of the weight racks at the gym. At fifty and disabled I am quite happy with that. See, just because “YOU” have RRms , there is no excuse not to be otherwise healthy. There is time to find your way, a path that “YOU” are comfortable with and that “YOU” will keep traveling along.

This illness does require of “YOU”, that an effort is made. Yes, I am very aware that sitting in a dark corner eating chocolate biscuits is the very easy way out, but, and there is always a but. What did “YOU” achieve, what good did “YOU” do in your life? I have noticed over my many years that there seems to be some sort of genetic angle to the RRms, what It not be a good thing to be able to show somebody in your family strength and not weakness. Perhaps not your family, perhaps a complete stranger that “YOU” never met. Show them that this may be a chronic lifelong disabling illness, that can never be beaten, but it can be checked. Held at bay, lived and coped with well.

We have a little time, so make that decision. Decide, yes, I have RRms and I am going to do what it takes to face it. To live my life the best possible way that I can and to be a light for the people who come after me and those beside me or in front of me that may be a little tired or lost. Come, take the next step now do it again and again. It is a long journey, lifelong actually, “BUT” it can be done, and it can be done by “YOU”

Royce

Believe in yourself, and when you are scared. Just believe a little harder and do not be afraid

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RoyceNewton profile image
RoyceNewton
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3 Replies
Jesmcd2 profile image
Jesmcd2CommunityAmbassador

Great post RoyceNewton ! MS is doable for Alot of us for sure! And seems like it can be genetics, except there is no proof of that yet.

But! I am the 1st one to tell my Angel Monsters to take vit D and what to "keep in mind"

I am the only one who has MS in the family! I'm special!🤣😂🤗💕

J🌌

RoyceNewton profile image
RoyceNewton in reply to Jesmcd2

as am I, you are right but no proof found yet

carolek572 profile image
carolek572CommunityAmbassador

Enjoy life's journey with 'ms' as best that you can! Adapting is key. :-D

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