Ocrevus

[Horse714]

I start my first infusion April 1st and I’m scared 😱 anyone have anything good to say about it??? Would love to hear 👂

[Horse714]

It will be done at the mellen Center at the Cleveland clinic

[ssdw1958]

No need to be afraid just drink fluids and every one says bring a book. I just fell asleep, you may be different. You are being driven both ways because you will be tired. Just be ready to say awhile.

You will be fine.

I will tell you the first infusion my legs were weak after I had been home for about an hour. But then again my legs are weak anyway I walk with a walker.

But after my other does I was fine.

Just don’t get your self all worked up an nervous.

Good luck to you!

[Horse714 in reply to ssdw1958]

thank you, I had my first infusion and went to work the next day!!🙂

[ssdw1958 in reply to Horse714]

YEAH 😀🌸🌺😀🌹

[greaterexp]

We have several members who are using Ocrevus, and I hope to join the club in a few months. You might try using the "search" button to find all the previous posts about Ocrevus.

I wish you the best and am excited for you to get started. I am hearing such good things about it!

[jimeka]

Someone gave a good tip the other day. Like ssdw1958 says, drink plenty and be well hydrated so it’s easier to find a vein. As Sandy says, relax, and tomorrow take it easy, it doesn’t work instantly, you will be fine, Blessings Jimeka 👍

[erash]

Hope all goes well for you. I have nothing bad to say about Ocrevus. It has been wonderful for me and wish you the same.🌈

[Iona60]

Ocrevus is doing great for me as well. I treat myself to special snacks on infusion day and my husband runs out to get me lunch. I spend most of my time listening to a book or watching Netflix on my phone. Good luck.

[kdali]

It wasn’t scary for me, but it was boring. Boooring, hope for a nap. I caught up on some music, an audiobook, and did some guided meditation. I hated the steroids and Benadryl. I bring a snack and try to get it down before the pre-meds ruin my taste buds. I had a super fun headache after the first half infusion and felt kinda crappy for 3 days. There are a lot of posts now you can scroll though about it if you do a search.

It’s been a miracle drug for me so far!

[IFwczs]

Congratulations! My neuro says it is the only MS DMT that slows down disability progression.

[88Dodgee]

I have had 4 Ocrevus treatments. All treatments went well but day after and next 3 were sometimes challenging.

[TeeDear]

I've had 4 infusions since I started ocrevus. I have experienced no M.S. relapses. When I had My first infusion I experienced slight breathing issues, but I took short breathes and tried to stay calm. I have experienced nothing in a negative manner since.

[carolek572 CommunityAmbassador]

Horse714 Ocrevus has been good to me. The infusion always goes well for me and I have had 3 infusions so far. Let us know how your infusion went by posting of your experiences when you can. I did do a few posts regarding my Ocrevus infusion experiences and I know a few others on the forum have done so as well.

Keep Smiling,

Carole

[Horse714 in reply to carolek572]

thank you I’ve been a nervous wreck about having them. I have had one so far and it went well. I’m very concerned about the cancer risk it frightens me.

[carolek572 CommunityAmbassador in reply to Horse714]

Me as well. I researched it as much as I could and took the advice of my neurologist.

[Horse714 in reply to carolek572]

what did your neurologist say??

[carolek572 CommunityAmbassador in reply to Horse714]

She told me of the results of the trials, and probably answered all of the questions that I had. I don't recall the exact questions, but I do remember that they were answered to my satisfaction. Hope that this helps.

[Horse714 in reply to carolek572]

thank you 😊

[JTZES]

It is really mild infusion. They start you out with Tylenol and Benadryl to ease side effects. You may get a metal taste in your mouth so take a mint.

The worst is the length of time it takes so take something to keep you occupied. I can usually can get in 2 movies.