First steps: G'day. Take it slow, be... - My MSAA Community

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First steps

RoyceNewton profile image
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G'day. Take it slow, be easy on yourself; this is a very long path that we all walk; it is not a sprint. There are no prizes for being the first to the finish line. Actually, the last place person is probably the winner. I am a huge fan of having a good long hard cry. Do not fret it does not mean that "YOU" under any circumstances are weak. Just that "YOU" need to let it out, whatever it may be. I think it may be different for different people. Do not expect that these tears are a one and gone event. Twenty years on and a quite settled life, I have been known to get quite misty-eyed over who knows what. Such is life with a chronic, incurable illness that takes great joy in messing with your emotions.

Part of my coping mechanism is that I make my Relapsing Remitting ms (RRms) a changing character. It is always a subtly changing something. Sometimes a broken part of me, sometimes a manipulative, conniving gremlin to be out maneuvered. RRms changes the rules on me whenever it wants, so I can do the same to it. Without a doubt, this has little effect on the illness, but it does give me a little power and strength, and we all need that whenever we can get it. When I was first Diagnosed (DX'd), I bought myself a yellow plastic construction hat. I played the Bob the Builder song every time I had an injection or any other RRms treatment. Silly yes, but it made me think that I was doing my part in fixing me and it made me feel a little better.

I know that "YOU" are seeing a pattern here. I found positives and ways always to give myself strength, to build me up. These days I play AC\DC Thunderstruck when I do my morning sit-ups. I remember the video of all the army tanks firing their cannons. I have actually seen a live fire power demonstration, and it is impressive. Another memory of strength always strength, never weakness.

"YOU" and I have RRms now, I will never look at this condition as anything but an opportunity to solve a problem. How do I do this? What do I need to do to achieve my goals? This is a problem that must be solved as much as I can. Never totally as that is a cure and that does not exist. Solved as much as I can to make my and your life journey as comfortable as we can.

Royce

Always a problem to be solved, that is all it is

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RoyceNewton profile image
RoyceNewton
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4 Replies
carolek572 profile image
carolek572CommunityAmbassador

Be not the problem, but rather the solution :-D

Thank you for the reminder, my friend! :-D

RoyceNewton profile image
RoyceNewton in reply to carolek572

yes, always the solution

hairbrain4 profile image
hairbrain4

Every day is a new adventure! You never know if all your parts are going to work or not.

RoyceNewton profile image
RoyceNewton in reply to hairbrain4

that is half the fun of it, the second part is trying to work out how to get around the problem

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