Making "Lemonade Out of Lemons" - and tr... - My MSAA Community

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Making "Lemonade Out of Lemons" - and trying to stay positive!

stepsforNeeC profile image
stepsforNeeC
โ€ข18 Replies

Today is cold in Philly, and not because the Eagles lost the game yesterday -just cold. Many headaches too as I just found out my pharmacy doesn't want to cover Copaxone and removed it from a Tier 2 -5 Category giving me an outrageous patient co - pay! The BATTLE IS ON as well as Shared Solutions.

NeeC

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stepsforNeeC
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18 Replies
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greaterexp profile image
greaterexp

I sure hope Shared Solutions can help.

stepsforNeeC profile image
stepsforNeeCโ€ข in reply togreaterexp

Angels and God already on it :) My doctor has to write another Medical Necessity and the Relentless forms....but won't God "do it" every time, we need ( I ) more faith - not the frustration!

Blessings

NeeC

jimeka profile image
jimekaโ€ข in reply tostepsforNeeC

After reading your post, Iona60 and pamgarner โ€™s post, thank God for the NHS, at least we know where we stand. You are all in my prayers ๐Ÿ™ blessings Jimeka

carolek572 profile image
carolek572CommunityAmbassadorโ€ข in reply tojimeka

jimeka Yes, and it appears that no one here in the USA was prepared for all this ~ and that frustrates me and I am sure many who are in my position! Not good

stepsforNeeC profile image
stepsforNeeCโ€ข in reply tocarolek572

Carole, I spent hours on the phone today (back and forth) unbelievable!

carolek572 profile image
carolek572CommunityAmbassadorโ€ข in reply tostepsforNeeC

I know as that is the case with me. I wonder if this will be the new normal?

stepsforNeeC profile image
stepsforNeeCโ€ข in reply tocarolek572

I believe it is. The outcome is Copaxone (my med) is so freaking expensive; the insurances don't want to pay. But I can't take anything else not even the generic!!!! So sad we have to FIGHT for our lives, especially if you have been successful on ONE Type of treatment or like me may have secondary issues.

Get our voices heard to our local lawmakers who care about Healthcare and become a reunited front!

stepsforNeeC profile image
stepsforNeeCโ€ข in reply tojimeka

Thank you, Jimeka - I shared because I'm a firm believer now that what affects "One might very well affect Some." In the New Year with it's troubling political climate; we gotta stay prayerful.

Thanks Always

NeeC

greaterexp profile image
greaterexpโ€ข in reply tostepsforNeeC

I'm struggling a bit with the change to a new insurance company and getting pre-approval, getting the prescription called to the right pharmacy, etc. We have wonderful healthcare in this country, but I sure wish we could work out the bugs. Of course, we'd still have to deal with doctor's offices dropping the ball.

stepsforNeeC profile image
stepsforNeeCโ€ข in reply togreaterexp

I know, my doctor's office is filling out the special form, (right now) Brand Medical Require/No Generic. Then I have to wait for Specialty Division of my Pharmacy to receive review and approval which I'm certain as they stated they will to process my medication until next year this and I'll have to go through this ALL over again. At least the Lemonade is getting sweeter - Thank God.

Went to my volunteer program today to take my mind off me and focus and others, I always feel better.

Blessings

NeeC

stepsforNeeC profile image
stepsforNeeCโ€ข in reply togreaterexp

My lemonade is getting sour and my Angels need help!!!!!! News Flash of the day. My doctor did his best, but this stronghold is the Medicare pharmacy division nonsense that is totally unjust! They just totally remove life sustaining medications, then charge a $3,500 deductible if you really want it????? SERIOUSLY???? I probably will have to go on a new medication regimen; I see my Neuro next week. We once talked about REBIF I will research it- please share any knowledge as well. Always Welcomed.

NeeC

Mjj2319 profile image
Mjj2319

Sorry youโ€™re having a hard time with Copaxone. Now that I think about it I did have pretty bad headaches while on Copaxone. I am currently on Ocrevus which I love. I was on migraine medication while I took Copaxone. I never thought it was due to Copaxone until I read your post. Iโ€™ve been off a month and no migraines not even caffeine ones. Are you taking anything for the headaches? Maybe you should mention it to Shared Solutions. They stopped calling me as soon as my pharmacy changed from Copaxone to the generic to save money, save medication just not brand ๐Ÿคฆ๐Ÿพโ€โ™€๏ธ

stepsforNeeC profile image
stepsforNeeCโ€ข in reply toMjj2319

Wow, I was speaking literally about the "headaches" of the bureaucracy of fighting for what we need to survive in our MS journey; BUT Guess WHAT????? I've been on Topiramate for migraines for years - and bad one too!

Thank you for enlightening me

Blessings Sis

NeeC

Mjj2319 profile image
Mjj2319โ€ข in reply tostepsforNeeC

Np, thank you for enlightening me aswell ๐Ÿค—

stepsforNeeC profile image
stepsforNeeCโ€ข in reply toMjj2319

Hey Sis, I'll be researching Ocrevus and talking with my doc. This battle with Copaxone and telling me I have to meet a deductible now because we're in a new year (NO Longer A Tier) and the deductible is almost a mortgage down payment ($3,500). Seriously

God's got it...Peace - will keep you updated

NeeC

Mjj2319 profile image
Mjj2319โ€ข in reply tostepsforNeeC

๐Ÿ˜ณ thatโ€™s expensive. Ok, great, keep me posted

Shiloh48066 profile image
Shiloh48066

Call the company. They can help with all of that. It's amazing what they do to help.

stepsforNeeC profile image
stepsforNeeCโ€ข in reply toShiloh48066

Thank you, been working on it!!!!!!! Looks like generic Copaxone might be the best I can do; but at least I stay on my regime.

Peace and Blessings -

NeeC

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