RRms, you picked the wrong person today. - My MSAA Community

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RRms, you picked the wrong person today.

RoyceNewton profile image
2 Replies

It is not a special day, it is just a day. It really is just another day spent with Relapsing-remitting ms. I actually can spell ms, but I do not want to give it the power of saying many scars in Greek. The less power and strength I give it the better I feel. Silly, but so is this condition. I will take every opportunity to give myself power. In my opinion "YOU" might like tostart doing it as well. Any chance that "YOU" can get to make your life a little bit easier is a good thing, and "YOU" a little stronger.

We are all chronically disabled. Just because I walked into the store, shoulders back, strong and proud, does not mean that I will walk out that way. I accept this. I am not happy about it, but I accept it. Constantly fighting does get tiring and my energy is better spent elsewhere. I only have half a Tank of petrol\gasoline, in me these days so I have to be smart as to how I spend it.

It is a learning experience. It is tricky at times to know when to slow, down or stop. It can be even more challenging when "YOU" constantly have to explain to a significant other or children. Let us be honest, it is hard to come to terms with ourselves, and we are the ones that it is happening to.

This a juggling act. once we could juggle several balls, Today we have to juggle so many more with an injured hand. Occasionally a ball is dropped, not on purpose, it just got by us. Sometimes a ball is dropped and lost forever. This is part of our condition. "YOU" are not a bad person, lazy or any other negative description. " YOU" just could not do it, be gentle, forgive yourself and maybe try again later. Of course if "YOU" are silly like me "YOU" will just push yourself until the floor and your face make friends again. I know this is what will happen and I am okay with it. I highly recommend against it at first;, but I do treat it all as a bit of a joke. I have a very different sense of everything.

Back to "YOU" my dear. "YOU" are learning all sorts of things now. Which protective underwear fits best, Disease Modifying Therapy, diet, exercise, efficient filing, how to make your disabled life one to be proud of, how to retain and strengthen the relationships that are most important to "YOU", and dare I say it how to get and give a measure of physical intimacy that leaves a smile on both your faces. Take your time, be as gentle as "YOU" can be with yourself, and others. Develop your "CAN" do "WILL" do I tried my best and failed attitude. The number of times I failed at things I cannot count, but I am okay with that. It just is. failing is okay, never trying is not. Always try, but I can not stress it enough if "YOU" can not do it, accept that do not beat yourself up about it. I do not wear button-down shirts or pants anymore because undoing buttons is sometimes hard. I am not weak or lazy it just is. I forgive myself and accept my weaknesses.

ms does not control; my whole life, I adapt, adapt and adapt again. I am not beaten, I have just learned to accept and adapt. I only have RRms and I am a human being, honest, WE are better than this. Let us be smart, learn all that we can. Do what we have to do and prove our strength. We CAN, we WILL, we are DOing our RRms, in our best way, always.

Royce

This is not a time to give up, it is a time to stand tall, pull your shoulders back and face RRms, with a smile, and say ms you picked the wrong person this time.

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RoyceNewton profile image
RoyceNewton
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2 Replies
Guava69 profile image
Guava69

Awesome being kind to one self and staying strong always a winning combo 👍☺️

RoyceNewton profile image
RoyceNewton in reply to Guava69

Yes certainly is

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