Hello everyone.: Diagnosed in 2010 with... - My MSAA Community

My MSAA Community

9,405 members21,193 posts

Hello everyone.

dailygrump40 profile image
7 Replies

Diagnosed in 2010 with RRMS. First noticable symptom was in 2008. Which was ON. But I wonder if I've had it longer because, thinking about it I had a bought of PBA in the late 90s early 2000s. My next neuro appt I am gonna let him know that. I'm on Ocrevus. First half dose was in Apri second half was in May. My first full dose is in November. I was on Tysabri but it slowly quit working for me. Depression has also been a fight.i think I need to get in touch with my physiologist to get my medicine adjusted or changed. I was on Zoloft 250mgs a day. He took me off that and put me on amitriptyline and I just had the dose raised to 75mgs and I now experience some off the wall things along with confusion. The other night I awoke in the bathroom and when I got to my bed I didn't recognize my wife. So I slept on the floor beside the bed.

Written by
dailygrump40 profile image
dailygrump40
To view profiles and participate in discussions please or .
Read more about...
7 Replies
jimeka profile image
jimeka

Hi, I like your name, I think it probably describes a lot of us on here, I know at the moment I am a challenge to live with. You never know how you are going to feel from one moment to the next. It’s the same with energy, one minute you have loads, next all you want to do is sleep. Anyway, vent away, we all understand. As for amitriptlyn I was given that for pain, but as you say, weird things happen. Get to your doctor and tell him what’s happening and let us know how you get on, blessings Jimeka 🦋

greaterexp profile image
greaterexp

Please see/call your doctor quickly about your medicines! That said, welcome to a great group. We all understand the grump part of MS, as well as the rest of it.

Check out what MSAA can offer to you. They have many resources to help in many ways.

mymsaa.org/

carolek572 profile image
carolek572CommunityAmbassador

Please dailygrump40 let your medical team know of your recent developments, as soon as possible ~ for your sake and for your wife's sake!

Jazzihorsecat profile image
Jazzihorsecat

A very warm welcome Home to the MSer Warrior Family Here, & We get that daily grump many times with this M.on.Ster. Ya never know wat it's gonna bring out, but we fight on!!👊✊💪 Def. Talk to all your Doc's about what's goin on. Again welcome! & always remember now your family too!😍👍Blessings--Jazzy🌹💜

dailygrump40 profile image
dailygrump40

Sorry I haven't been on much lately everything is just running together, like one big blur. I placed a call tto the dr about the medicine that's been giving me issues. Just waiting for a call back

ssdw1958 profile image
ssdw1958

Hi fellow MSer I am glad you found us were a good group of people here. I was diagnosed in 2004 but I knew something was not right and so I had to tell the doctor that there was something wrong and so on. But here we are on this site. Remember we are not doctors here but we all have our own stories to tell.

Have a good weekend bye for now.

ssdw1958

RoseySawyer profile image
RoseySawyer

Hi and Welcome! I hope you get all of what's happening figured out with your doctor. 😊❤🌷

Not what you're looking for?

You may also like...

HELLO AGAIN EVERYONE

I know that I haven't posted in a long time, but things have been crazy. On March 7 my husband...
Sukie427 profile image

Hello everyone

I know it's been a long long time since I've written anything. I've retreated into the recesses of...
Allen5280 profile image

Ocrevus Update – 2nd half dose

I went on Monday and took my second half dose of Ocrevus. It went *significantly* smoother. I did...
miwido profile image

Hello everyone

I have been here for just a couple of days, am still finding my way around. I was diagnosed with...
dearydear57 profile image

Hello Everyone!

My name is Angie, and I've been diagnosed since 2018. I found this site while looking for a local...

Moderation team

See all
johnMSAA profile image
johnMSAAPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.