Hello everyone I hope and pray y'all are doing ok. After the first absolutely wonderful Friday following my first infusion of Ocrevus, things were a little tough. I will say that I have be3n feeling better in some aspects. I don't feel quite the extent of exhaustion I had been prior. I still am worn out quickly however there has been some great improvement over being so whiped out every minute of the day from the time I would wake to the time I could finally sleep. I had an issue with my eye yesterday. Thought a possible eye infection was trying to set in. However after rest I was able to put my contacts back in today so I had merely scratched it. I have had 4 Charlie horses in my right shoulder the last two days that have left my right arm almost completly useless... ugghhh... Though the majority of my spasticity has been not quite as bad overall other than my arm. My feet are pain free most of the time, I have been able to climb the stairs into my RV with out the use of the hand rails. I have never been able to do that! I can tell my muscles have been leftsuch a weakened condition. For the first time I am wanting to find a way to be able to maybe start some physical therapy here in the near future. 😆 Other than these pesky spasms that won't let go for anything I am doing pretty well overall. I have been sleeping quite a bit but the rest is doing me well. Just happens not to be at the most normal of times.
As for my infusions, the first was on the 4th. It was half a dose to allow my system to adjust to the medication. I recieve the second half on the 18th. They are 3 hour infusions. After my second half on the 18 they will go to 6 months between them and they are 5 hr infusions. They start the infusion with Benadryl and a Steroid. I had a bit of vertigo for about the first hour and a half but slept on and off most of it. I did have a round of vertigo yesterday afternoon for a couple hours on and off. But can't say that's the meds case that normal for my reality now! Ha ha ha... just another day in 🌴 All in all still feeling better overall. More to come in the following days, my arm is killing me!!!
Y'all are in my thoughts and prayers