Nothing will cure your ms, nothing cures a common cold. There really are no cures for anything, technically speaking. Vaccines etcetera give you a little bit of the virus so your body will recognize it and be able to fight it if you get the illness. Maybe if anybody had a good idea as to what causes ms we could have got a shot in the beginning before this all started and we would have beaten it years ago. They did not, so today we get to enjoy the variabilities of a very long life with ms. In case you missed it that was sarcasm. I have not worked out a sarcastic font, maybe one day.
Okay, we have worked out that today in 2018 our Relapsing Remitting ms (RRms) is incurable. Rather scary, but life is like that, we just have to get some new tools for our toolbelt, get some new skills and start doing our best. That my friend is all any of us can do. Find sources of information and new techniques to get us through each night and day.
Of course, we have our ms standards. Our protective underwear, our Disease Modifying Therapies (DMT)s, our diets and our exercise. Diet has to be a lifestyle not 2 weeks to lose 5 pounds (3 kilograms ish) It has to be a way of eating for my life. Why it things that may just give "TOU" more problems later. The same is true for smoking and drinking, Exercise wise I really like core work. I can stand straighter and get up off the floor if need be, both very handy skills to have, when "YOU" get to spend some time (LIFE) with ms.
I know not everybody was a file clerk (CLARK) or a typist, but "YOU" do yourself a huge service by starting and saving notes about your health. When exactly was it that "YOU" had that steroid infusion, and come to think of it, why did you have it. Did it work or did "YOU" turn green, perhaps we will not try that again. Of course "YOU" are still young so noting how cute the staff were is okay. Never forget that just because "YOU" are enjoying an ms life that "YOU" are blind and cannot appreciate beauty. Even if it is just in passing.
To the next big one. I really should say this is a HUGE one. "YOU" have a very long time with ms. It does not have to be your all and everything. It does not have to be an end. It can be and really is merely a change of circumstances. Something new for "YOU" as a human being to adapt to, for adaption is what got us to the moon and too Challenger Deep. No idea what challenger deep is, give "YOU" a hint. It involves the Marianas Trench. Now go forth and learn, be curious. Another thought, how well can "YOU" explain what is happening to your body? Do you understand that the myelin sheath is being damaged and repeated damage is causing difficulties in the passage of (forgot the name) messages through your body. That is why "YOU" have problems doing some things some of the time.
There is a lot to learn, and a lot to forget. Remember knowledge is power. There is no good reason for "YOU" to be powerless, if your computer does not work I am sure there might be a library "YOU" can visit. Can not drive or walk that far. Do some research and find a service that might help "YOU". There are few reasons to be a hermit, unless "YOU" want to be. So get out there and find ways to solve your issues. I met my best friend on a chat group like this twenty plus years ago. I just said I liked an email she had sent. I got a dog because I heard him barking one day and I asked the neighbour if he could visit once in a while. He is here nine days out of ten now. Do "YOU" understand? We are all chronically disabled but there is so very much available to us, "YOU" just need to open your eyes and expect the unexpected and the unusual. Go live a good mslife.
This can be a very doable disease, it just takes "YOU" making a decision, for it is always your choice. "YOU CAN YOU WILL YOU DO" YOUR VERY OWN MS.
Royce
Just doing mine
My MS Journey
Hello, I’m new to this community as my husband was recently diagnosed with MS.
We are lucky to have MS!
