Neuro's office called today: I sent them a... - My MSAA Community

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Neuro's office called today

bxrmom profile image
6 Replies

I sent them a message through the online portal about my white cell levels were low again (with a copy of the report because my family dr doesn't use the same place for bloodwork) and he said that I should maintain on the Tecfidera and he will recheck at my Nov appt. If it is low at that time I should probably think about changing dmts.

Jessie

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bxrmom
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jimeka profile image
jimeka

I wish we had that facility in the U.K., I would love to be able to email my neurologist rather than travel, and wait to see her, but then I would loose out on lunch with my hubby. I hope you find out why you are having a low white cell count. 🦋

bxrmom profile image
bxrmom in reply to jimeka

It's a rather new feature in the U.S. Depending on the doctor/hospital they have gone to electronic medical records and this is one of the nice features.

Jessie

Memc profile image
Memc in reply to jimeka

Tecfidera is known to cause lymphocytosis

erash profile image
erash

How low? If u don’t mind me asking.

bxrmom profile image
bxrmom in reply to erash

erash I don't mind sharing. Mine is at 2.7, normal is 3.8 - 10.8

Memc profile image
Memc

That seems like a reasonable approach

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