So many questions

[Nakomi]

Diagnosed in November of 2017 after three MRIs and numerous other tests. The neurologist said she thinks I have had it for years and my final diagnosis is Secondary Progressive Multiple Sclerosis after the rundown of the "Have you ever had..." list. Needles to say, I am scared because nobody else in my family has been diagnosed with it.

[Jesmcd2 CommunityAmbassador]

Hi Nakomi welcome! And it's ok to be scared! 🤗 No one in my family has ever had it either. And I'm going on 4yrs Mar.

You came to the right place tho. I'm sure you were given a ton of 'stuff' about MS, which confused you more.?.

The 1st thing I can tell you is breath! And take things at what you can handle!

Everyone here has been where you are now, and know that Today, your Ok!🤗💕

You are among friends that understand!

Just ask away, even if you don't know the question yet. ☺️

So welcome! Also feel free to vent, share, and laugh, aand cry here to, we get it, we all bleed MS!

🤗💕

J🌠🎃

[Juliew19673 in reply to Jesmcd2]

"... even if you don't know the question" Yes! In the beginning for me, I didn't know how to ask about issues or if they would be considered seriously. So thanks for saying that!

[Jesmcd2 CommunityAmbassador in reply to Juliew19673]

Very welcome!🤗💕

[greaterexp]

I’m sorry about the diagnosis, but know that it also can hold a level of relief at knowing what is causing your symptoms.

Try to remember that my MS is not your MS. Within each diagnosis is a wide variation of symptoms and path of progression, and each of us is unique.

I hope that rather than focus energy on what might happen, you can gradually focus on what is and what you can still do. More than that, I hope you can focus on who you are, rather than define yourself by what you can or cannot do.

Come here and vent and be encouraged. We understand.

[Kenu]

Welcome to our crazy 😜 group of MSers. This is a great place to vent and find out lots of information about MS. I was diagnosed twenty three years ago and have been on seven different DMT’s as new ones came out and old ones quit working. I am still upright with an AFO and use a cane when real tired or rough terrain. No one in my family has had MS. Hang in there and stay positive 👍🙏🐾😉. Ken

[Juliew19673]

I was DXED 5/15/2018 and heard the same. The neurologist suggested she thought I had have it for 10 years and guessed at PPMS. I have since found out I have 3 cousins with it, but they were DXED in their twenties. I'm 53. One attorney I talked to about getting SSI, told me that they shouldn't label me with a type yet as they won't know until I have had MS for at least a year. He further said that the initial "Flare" might be the worst that I ever deal with and only time will tell.

I can say that since being DXED and starting Ocrevus, taking Vitamin D3, B12 and using methyl periprednidone (IV steroids) when things get bad, I'm back to my old "self" about 70%. So there is hope!

[Marcih]

I was diagnosed in late 2016. Feel Ive had for years unsteadiness, cognitive problems..... Took my boss sending me home nov 2017...said i was a liability.... Will never get over those words. 😔

[mrsmike9 in reply to Marcih]

What a crap boss! Good thing you don't have to put up with that kind of attitude anymore! You DO have value and are NOT a liability. His ATTITUDE is!!!

[YLGram]

It is scary, just like anything new. I'm am the only one in my family also, been diagnosed 27 years, might have had it 40 years they think. It does its destruction silently until all of a sudden it is too much for the brain to compensate and then you have the first"attack". It will come and go(relapse/remit);but always there. You have found a good group with a lot of experience. MS is like a snowflake -no two are alike- so your journey on this road will look different then any of us, but MANY common elements. Good luck, it is always challenging but it becomes just another aspect of who you are.

[lbenmaor]

Nakomi,

You've come to the right place to get information, express your feelings and get ?s

answered. We are all here to help each other. It's okay to be scared. All you need to do is gather information that will help you.

It can be from friends, Doctors, the MS Society or the internet.

Best Regards,

Leslie