A large part of living well with ms is knowing it. Knowing how it manipulates moods, behaviour and emotions. How "YOU" can go from the top of the path to hurtling towards the bottom in seconds. Maybe it might be fun if "YOU" were riding roller coasters. but "YOU' are not. "YOU" want things life to be quiet and back to your normal as fast as possible.
For no apparent reason, ms can take "YOU" from fine to blah in seconds. The trick is to get back to fine as fast as possible. Having studied yourself, "YOU" have learned that if "YOU" just slow down, think about it and calm down. Take a deep breath and allow yourself to centre, things will come back to normal. Perhaps not anybody elses normal, but your version of it. Do not fight it nor attempt to stand against it. No, it is just your normal, because, it really is about "YOU" when it is in your head and it is your ms
Open your eyes to whats around "YOU. There are lots of different techniques that can be used to find yourself again and bring back the calm that we all yearn for. I have a friend that pulls weeds, another that just sits at the computer playing Farmville. I personally like to talk to my Joint Dog. He is such a calming and centring influence.
Find what centres "YOU", add that to your ms goodies vault and when "YOU" need it, grab it and calm yourself. Do not fight yourself if something does not work as planned. Just make a new plan.
Remember your best friends are being flexible and being like BAMBOO and bending. I can not say this enough, but "YOU" being a newbie to our ms world, have to learn to be flexible, it is one of the more important things that "YOU" will need to learn about your ms. Yes, there is a lot of practical things, like Depends, Disease-Modifying Therapies, diet, exercise, etcetera, but there is the "MENTAL GAME"
Give yourself every opportunity to succeed. Every move "YOU" make, every decision, absolutely everything "YOU" do, must be as advantageous as it can be for "YOU" Do not be rude, spiteful or cruel to people, just think first, is this good for me or bad for me. Is there something I am willing to do to make this easier for me. Does this give me an advantage in my ms gameplay or is this really something I am going to regret? If the regret cost is too high, "YOU" know what to do. Avoid it.
"LEARN LEARN LEARN" your ms, pay attention. Slow down a little, wiggle your hips and squirm through the ms obstacles. This is a very "DOABLE" illness today, all it takes is your making a decision to calm down. Centre yourself an just "DO IT"
Royce
Just getting back on track.
Is it just the MS or Ocrevus?
Just checking in with my latest oil painting
