dogdaddy, I think it was you that sent the article about stem cells. Very interesting, thanks a lot. My mother had stem cell work done on her shoulders a few years back and is very happy with it. As my Trigeminal Neuralgia is slowly starting to wake up this could be a new option. I believe I shall "LEARN" some more about that clinic, once I get its name. Does anybody have its name? Time to go learn more.
Royce
Trigeminal Neuralgia 21 years, 3 surgeries, both sides of the face
What exactly is Trigeminal Neuralgia? Someone was saying its like a blinding stabbing pain on one or both sides of ur head?
Mine is just in my left cheek and jaw and when I have it, it hurts so much it hurts to eat! 😀
I never knew what it was called but i think i have had this my whole life. Usually its my temple and its blindingly painful. I see stars when it happens but doesnt always last. I gotta remember to talk to my neuro abot it
did I mention after the last got fixed for a while the right side started just so it would not be left alone.?
imagine being stabbed in the face with an ice pick continually and at random places, rather painful & huge amounts of drugs do nothing to deaden the pain. Actually, nothing does.
that sound absolutely horrible
it was now I just dribble 
Ya wen it happens it stops me in my tracks. U cant think u cant speak or even move. All i know is a red haze of pain. I am so grateful its gone as fast as it comes. To live with that constantly is unthinkable. My condolences for ur pain 🙏🏻
Thanks, it mostly took hours of sleep away at night but had to stop holding anything breakable or spillable.
US STEM CELL CLINIC usstemcellclinic.com/ is the one run by Kristin Comella, PhD featured in episode 5. This is where I want to get my stem cell treatments.
she really does sound motivated
Contacted U.S. Stem cell, now let's hear what they have to say.
They quoted me about 12K for IV stem cells and a shot directly into the base of my neck/spine plus banking my stem cells for future treatments. They would do 2 draws of fat the one is used for treatment the same day and one for banking. The whole procedure would take about 4 hrs
Efanks
Hi. My dad has had trigeminal neuralgia for close to 30 years. He has tried everything: gabapentin, Trileptal, all of the surgeries including freezing the nerve, heating the nerve, putting a barrier on the nerve and GammaRay. Things would work for a little while but then they would stop. The thing that has been a lifesaver and kept the trigeminal neuralgia at bay has been Botox injections every three months given by his neurologist. Trigeminal neuralgia has been nicknamed the suicide disease because the pain is so excruciating. It has literally knocked my father to the floor. Ever since the Botox he has not had a problem in over a year. Prior to that the longest anything worked was really a couple of weeks. For those of you who have this awful disease you have my prayers.
Botox, thanks was wondering what I might do next. I have tried a cyber knife, which is a type of laser, but outpatient. Suicide disease, yes we joke about that whenever I OD on oxycontin. Morphine does not work for me, anymore.
Thanks for the Botox info.
Double Whammy, trigeminal neuralgia and rrms
Differences in MS service.
Looking for suggestions...
