A different project to start looking into - My MSAA Community

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A different project to start looking into

RoyceNewton profile image
β€’16 Replies

dogdaddy, I think it was you that sent the article about stem cells. Very interesting, thanks a lot. My mother had stem cell work done on her shoulders a few years back and is very happy with it. As my Trigeminal Neuralgia is slowly starting to wake up this could be a new option. I believe I shall "LEARN" some more about that clinic, once I get its name. Does anybody have its name? Time to go learn more.

Royce

Trigeminal Neuralgia 21 years, 3 surgeries, both sides of the face

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RoyceNewton profile image
RoyceNewton
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16 Replies
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Midgey_Midge06 profile image
Midgey_Midge06

What exactly is Trigeminal Neuralgia? Someone was saying its like a blinding stabbing pain on one or both sides of ur head?

BigMar7 profile image
BigMar7β€’ in reply toMidgey_Midge06

Mine is just in my left cheek and jaw and when I have it, it hurts so much it hurts to eat! πŸ˜€

Midgey_Midge06 profile image
Midgey_Midge06β€’ in reply toBigMar7

I never knew what it was called but i think i have had this my whole life. Usually its my temple and its blindingly painful. I see stars when it happens but doesnt always last. I gotta remember to talk to my neuro abot it

RoyceNewton profile image
RoyceNewtonβ€’ in reply toBigMar7

did I mention after the last got fixed for a while the right side started just so it would not be left alone.?

RoyceNewton profile image
RoyceNewtonβ€’ in reply toMidgey_Midge06

imagine being stabbed in the face with an ice pick continually and at random places, rather painful & huge amounts of drugs do nothing to deaden the pain. Actually, nothing does.

dogdaddy profile image
dogdaddyβ€’ in reply toRoyceNewton

that sound absolutely horrible

RoyceNewton profile image
RoyceNewtonβ€’ in reply todogdaddy

it was now I just dribble :-)

Midgey_Midge06 profile image
Midgey_Midge06β€’ in reply toRoyceNewton

Ya wen it happens it stops me in my tracks. U cant think u cant speak or even move. All i know is a red haze of pain. I am so grateful its gone as fast as it comes. To live with that constantly is unthinkable. My condolences for ur pain πŸ™πŸ»

RoyceNewton profile image
RoyceNewtonβ€’ in reply toMidgey_Midge06

Thanks, it mostly took hours of sleep away at night but had to stop holding anything breakable or spillable.

dogdaddy profile image
dogdaddy

US STEM CELL CLINIC usstemcellclinic.com/ is the one run by Kristin Comella, PhD featured in episode 5. This is where I want to get my stem cell treatments.

RoyceNewton profile image
RoyceNewtonβ€’ in reply todogdaddy

she really does sound motivated

RoyceNewton profile image
RoyceNewtonβ€’ in reply todogdaddy

Contacted U.S. Stem cell, now let's hear what they have to say.

dogdaddy profile image
dogdaddyβ€’ in reply toRoyceNewton

They quoted me about 12K for IV stem cells and a shot directly into the base of my neck/spine plus banking my stem cells for future treatments. They would do 2 draws of fat the one is used for treatment the same day and one for banking. The whole procedure would take about 4 hrs

RoyceNewton profile image
RoyceNewtonβ€’ in reply todogdaddy

Efanks

Tina11762 profile image
Tina11762

Hi. My dad has had trigeminal neuralgia for close to 30 years. He has tried everything: gabapentin, Trileptal, all of the surgeries including freezing the nerve, heating the nerve, putting a barrier on the nerve and GammaRay. Things would work for a little while but then they would stop. The thing that has been a lifesaver and kept the trigeminal neuralgia at bay has been Botox injections every three months given by his neurologist. Trigeminal neuralgia has been nicknamed the suicide disease because the pain is so excruciating. It has literally knocked my father to the floor. Ever since the Botox he has not had a problem in over a year. Prior to that the longest anything worked was really a couple of weeks. For those of you who have this awful disease you have my prayers.

RoyceNewton profile image
RoyceNewton

Botox, thanks was wondering what I might do next. I have tried a cyber knife, which is a type of laser, but outpatient. Suicide disease, yes we joke about that whenever I OD on oxycontin. Morphine does not work for me, anymore.

Thanks for the Botox info.

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