Trigeminal neuralgia

[Hoggerz7]

I was diagnosed Jan 28 2013 with PPMS. I just started getting hit with trigeminal neuralgia two days ago. I wouldn't wish this on anyone. I fired my neurologist because they never got back to me. Getting a new one though. Hopefully they are more responsive. Anyone else have this condition?

[Royjr]

Good luck to you, hope everything works out for you

[Hoggerz7 in reply to Royjr]

Thanks

[Juleigh21]

I have had TN since 2012. It’s awful! Carbamazepine and blocks done by a neurologist that specialized in migraines gave me relief. Have you contacted your MS doc? Good luck!

[Hoggerz7 in reply to Juleigh21]

Yes and after they got done laughing at me that I self diagnosed myself. I told them what was on the internet was spot on they prescribed carbamazepine without seeing me. I'm changing to another neurologist.

[Juleigh21 in reply to Hoggerz7]

Is the carbamazepine working? First time I used it I thought it was a wonderful miracle drug. I was in the emergency room And got it in an IV.

[Hoggerz7 in reply to Juleigh21]

It seems to be working. I take it after an attack. Plus they tripled my neurontin.

[greaterexp]

I’ve never had to deal with that, and I’m sorry you are. I hope you find a great new doctor.

[Hoggerz7 in reply to greaterexp]

When I told my neurologist office that I wanted my records sent to another doctor they got right back to me. Too late.

[janetb1968]

My boss has this and is in absolute agony 😑😑😑😑 she does not have MS xxxxx

[ssdw1958]

Not With the neurologist but with my first GP you go and get some one who knows what there doing. Best of luck and I hope everything works out well for you. Stay strong.

[Fancy1959]

Hoggerz7, hello and welcome to this awesome chat room from Fancy1959. You have found a safe place to come and ask questions, voice concerns, or simply speak to others who truly understand what you are going through. If you are in the hunt for a new neurologist try contacting the national MS Society at 1 800 fight MS. You will get a specialist assigned to your case and they will be happy to recommend neurologist in the area you live that they consider their Partners In Hope. I've used them in the results were wonderful. I have been fortunate enough to never have to deal with Tri.....

Make sure you write notes that you want answers to and make a log of symptoms and take it to your new neurologist when you find one worthy of your time. Good luck on your search and we are glad you have found us. Keep us informed of your progress and your hunt for new neurologist. Take care until we speak again and remember that together we are stronger.

[Iggyvair]

Dr Raymond Sekula UPMC Pittsburgh Pennsylvania USA, instant and total relief. He did a Rhizotomy on me.😇

[InvestorwithMS]

TN yes---VERY VERY PAINFUL--mine was under control with pregablin but since I took the vaccine in Feb- nothing is working.