Neuro appointment: So... I'm going to ask... - My MSAA Community

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Neuro appointment

suznj325 profile image
7 Replies

So... I'm going to ask about Ocrevus. Anxious to hear her thoughts since she has sort of a different school of thought about SPMS & progression.

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suznj325
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erash profile image
erash

Please share what she says about Ocrevus and SPMS. I also have SPMS and my neuro is a bit wishy washy about its benefits for SPMS. I see her next month.

suznj325 profile image
suznj325 in reply to erash

will do 👍🏻

MrBigCat profile image
MrBigCat in reply to erash

I have SPMS too and my neuro is not that optimistic about any DMTs. She is keeping me on Copaxone because she said there is not clear evidence to show the change from RRMS to SPMS. You might have relapses while you transition to SPMS.

suznj325 profile image
suznj325 in reply to MrBigCat

I transitioned to SPMS approximately 5 years ago. Stopped taking Copaxone because I hadn't had a relapse in at least 3 years before.

Yooper profile image
Yooper

It should be a choice you make. Talk to her, pray and take the best choice for you 🙏.

lbenmaor profile image
lbenmaor

Let me know what she says.

Leslie

suznj325 profile image
suznj325 in reply to lbenmaor

My follow up post was an update yesterday afternoon.

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