Will I every be repaired

[SlmHarris]

The more and more I hear of medications helping with progression my question that comes to mind is

"The damage already done to my brain and spine will it be repaired back to normal(whatever normal is)"

What do you think?

[rjoneslaw]

You will never be back to normal but the DMT should stop or slow down any damage done.

Like you I want to be normal but now you just have to accept the new normal.

I read this article that may help you called "Claiming My MS and Accepting the Reality of My Disease" I sent this to my mother because she would always say don't claim that , that's what the dr says. After she read that article my life was better when it came to her saying side comments under breath and demanding things from me.

The link is below

multiplesclerosisnewstoday....

[SlmHarris in reply to rjoneslaw]

Thank you for sharing the article with me! I do accept my life with MS along with my family.

I guess more than anything that I wonder about myself is - How much is permanent, fixable and I'm excited about stopping any further damage.

I'm very excited for those in early stages! I pray for the MS family I have become part of!

[Fancy1959]

Welcome SlimHarris to this incredible chat room! You have found a safe place to come ask questions, voice concerns, find out information, or simply speak to others who truly understand what you are going through. Now Slim the question you have asked is the 64 million-dollar question that everyone with MS wants to know. The advances today with the new DMT that there are coming Fast and Furious. There is talk of a new trial with a medication or a therapy that actually rebuilds Mylen. If that medication becomes available and is proofs of the FDA for General MS use that indeed would be a game-changer for every person with MS.

Slim at this time the best we can do is to make sure we find a good DMT and stay on it to prevent damage from being done to our bodies by this silent monster that were all fighting. I've been on ocrevus now for 9 to 10 months and this past April I had my first clean MRI in 5 years. There was no new lesions on the MRI and no active old lesions on the MRI. That is news every person with Ms longs to hear because right now that is the best we can hope for. I sincerely hope you're on a disease modifying therapy or DMT because they are the only weapon we have right now to prevent this silent monster from running amok in our brains and central nervous system.

I think I beat around the bush more than answered your question but this is my honest opinion at this time. Hopefully there will be therapies available in the not too far future that will give us a chance to rebuild the Damage Done. Right now the best we can do is in our brain is to work at connecting new networks of nerve connections that go around the lesions in our body caused by the MS. The new connections aren't as good as original ones MS damaged but it's much better than giving up and letting the disability take control of your life totally.

I can't wait to talk to you next because the more we talk to each other the quicker we will get to know each other. I am certain there is much we can learn from one another. Until we speak again please take care and remember that together we are stronger!

[SlmHarris in reply to Fancy1959]

I am on Ocrivus also. I have had 2 full doses. My MS does not seem better but not worse. I am due an MRI later this year. Hoping some of my dots on my dot to dot brain are gone and not active.

There are alot of promising studies going on. I'm hoping the stem cell is our answer. Hoping insurance will cover it.

Wishing you the very best!

[greaterexp]

That’s what we all hope for — that the damage can be repaired. I hear about promising research into reversing the damage that may someday soon become a reality. Wouldn’t that be fabulous?!

[SlmHarris in reply to greaterexp]

Abdolutely!

[goatgal]

SimHarris Interesting to ponder: if my MS could be completely halted, who would I be? What abilities would I have? Would I regain absolute mental clarity? Would I stop stumbling? Would my vision return to pre-fresnel lenses days? Would the stiffness and spasticity relax? Or has MS already halted since I have no new brain lesions? Are the symptoms that plague me not MS but old age as I creep ever closer to 80?

[6092177588]

I wish for the same answer. Keep searching. We will do this together.