Tips on living with MS: Hi! My name is... - My MSAA Community

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Tips on living with MS

lbenmaor profile image
24 Replies

Hi!

My name is Leslie. I've lived with MS for many years.

There are a few things that have helped me with it:

1. Eating foods with Vitamin D

2. Taking Alpha Lipoic Acid

3. Writing things down

4. Exercise

5. Get plenty of rest.

6. Vitamins: B12,C,D,E Fish Oil and One a Day Vitamin

Does anyone have hints how to improve your handwriting?

Thanks.

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lbenmaor profile image
lbenmaor
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24 Replies
Fancy1959 profile image
Fancy1959

Ibenmaor, it's Fancy1959 and I would like to welcome you to our awesome chat room. You have found a safe place to come and ask questions, voice concerns, or simply speak to others who truly understand what you are going through. With almost 3,000 members in this chat room person is certain to have advice that home with you. Supplements and vitamins can have very strong interactions with each other and with other medication. I'm glad this combination seems to help you but have you ever run past the list of what you're taking to a neurologist? Ms is a disease that you need to get a neurologist involved with if you have not already.

The best advice I can give you for improving your fine motor skills and or your handwriting is to get yourself an adult coloring book and your choice of media colored pencils, crayons, markers Etc and practice coloring in the book. Even though I didn't color a lot in the book it still help my handwriting tremendously.

I look forward to speaking to you again. The more we interact with each other the quicker we will get to know each other. I am certain there is much we can learn from each other. Please take care of yourself until we speak again. Remember that together we are stronger!

lbenmaor profile image
lbenmaor in reply toFancy1959

Fancy1959,

Thanks for your response. I will get a coloring book and crayons.

How did you hear about that?

Leslie

Fancy1959 profile image
Fancy1959 in reply tolbenmaor

I've got all kinds of people that are in my ring of supportive friends and family. One in particular is a rehab nurse for people that have Lou Gehrig's disease and she frequently uses adult coloring books to help her patients remain in control of their motor skills as long as possible. She pass this info along to me to try to work on my motor skills with the coloring books and I did and I was amazed at how much it helped. So I pass it along now whenever someone asked questions about how to improve their motor skills. By me having MS for 20 some years I have a broad assortment of support staff I can pull on because I was a very active person prior to me being diagnosed with MS and I made many many friends through scouting, horseback riding, farm work, excetera. It pays to help others out because then when you need something there right there for you! For years, I was the person people came to to get things done and boy has it paid off now that I need help and ideas to get things done myself!

lbenmaor profile image
lbenmaor in reply toFancy1959

Fancy 1959,

I truly appreciate your warm words and helpful information.

I look forward to speaking with you again.

Leslie

KC0808 profile image
KC0808 in reply toFancy1959

Excellent tip - coloring for motor skills and for me calming. Anything that alleviates stress even for just a moment is a good thing.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador

Hi and hello lbenmaor those are all great tips!

I'm a big one for writhing things down! 🙄 my problem is finding where I wrote it! 😞🤣

🤗💕

J🌠

lbenmaor profile image
lbenmaor in reply toJesmcd2

I find writing things down in 2 places is helpful.

I have a notebook on the table and sometimes I write

things down in a book upstairs in my room.

Iona60 profile image
Iona60 in reply toJesmcd2

Start that master list.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply toIona60

You do it Iona! 🤣😂 honest to God if I had a list like that, I would go nuts! 🤣😂🤗💕

J🌠

Iona60 profile image
Iona60 in reply toJesmcd2

If I didn't have one, I'd be nuts. I'd always be thinking that I had missed something. Were proof that MS affects all personality types.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply toIona60

Absolutely! ☺🤗💕

Putting you in charge of spread sheets! 🤣😂

J🌠

lbenmaor profile image
lbenmaor in reply toJesmcd2

Thanks. I am very honored!

ssdw1958 profile image
ssdw1958

You ask about hand writing ✍️ I want to let you know this might sound different but my cursive is better in the morning I find when I am rested my signature looks so much better.

Sandra

lbenmaor profile image
lbenmaor in reply tossdw1958

Sandra,

Thanks for the tip.

lbenmaor profile image
lbenmaor in reply tossdw1958

Thanks for the tip.

RoyceNewton profile image
RoyceNewton

Handwriting, for get that. I ca not even read my own writing. The rest you pretty much have it. Glad to learn about the colouring.

greaterexp profile image
greaterexp

Here's another welcome to this group of lovely people.

I can't offer any suggestions about handwriting, but will be watching responses for ideas, for mine has gone downhill. Other than talking with an occupational therapist, I don't know of ways to help.

I appreciate your advice on supplements. I, too, take Vitamin D and alpha lipoic acid, as well as taurine and N-acetylcysteine as per my primary care NP's suggestions. I can't say for sure that it's had an effect, but since starting on these, my walking has improved quite a bit and muscle spasms have been reduced somewhat. I also seem to have more energy.

We share loads of suggestions here, but of course, we always suggest talking with your neurologist/primary care doctor about them. Thanks for sharing your experience.

lbenmaor profile image
lbenmaor in reply togreaterexp

Thanks for the response. I'm glad that helps you.

What is Taurine?

greaterexp profile image
greaterexp in reply tolbenmaor

neurosciencenews.com/taurin...

multiplesclerosisnewstoday....

Here are some sources that explain it better than I could.

lbenmaor profile image
lbenmaor in reply togreaterexp

Thanks for the info.

Peruzzot profile image
Peruzzot

I have issues with hand writing as well. I like the coloring book idea and will have to try that. I have a few journals that I always write stuff in. One journal is for work where I write all of my notes in. One is for medical where I write down any symptoms, issues, doctor appointment notes, questions for the doctors, exercise and weight management notes.

The other thing I do is start writing with the other hand when the one starts getting to tired or sloppy. I'm ambidextrous so I can do that somewhat easily. It was easier before MS, but anyone can learn to write with their non-dominant hand. Because you're using the opposite side of the brain to use the opposite hand, doctors say that you can create new neurons and pathways in the brain so it might help you.

lbenmaor profile image
lbenmaor in reply toPeruzzot

Thanks for the tip. I've never tried to write with my left hand.

It's very hard for me to do. Is it worth training my left hand to do this?

Peruzzot profile image
Peruzzot in reply tolbenmaor

It can't hurt. But it will take a lot of effort for someone who isn't naturally ambidextrous. It comes naturally to me and didn't know everyone wasn't like that until I started going to school. I've known a few soldiers who have lost their right or left hand/arm and have been forced to learn to write with their non dominant hand. It's very hard for some people at first but gets easier with practice.

lbenmaor profile image
lbenmaor in reply toPeruzzot

I will certainly try it.

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