Cost of Ocrevus

[JeanieU]

Hi! I hope you don't mind me posting here. My husband has PPMS, he's 52, was in fairly good shape, incredibly thin, but has declined so rapidly lately he's no longer working. I'm looking for a job for him as a security guard, or a receptionist at a fitness center, something where he can sit. He's still thin, but beaten down. He's scheduled for first treatment in August. Our insurance covers it, or at least 80% of it, but our portion is $13,000. Does this sound right? I'm struggling to figure out how we're going to afford this twice a year for the rest of his life. I'll find a way, of course. Anything to help him. Just seems terribly high.

[RoyceNewton]

Ask Ocrevus about a Patient Assistance Progranne of some sort.

[MsGelfling1]

That is absolutely ridiculous. There are tons of medications for MS. Either search out a different med of do as RoyceNewton suggests. Contact Ocrevus about a patient assistance program.

[greaterexp]

genentech-access.com/hcp/br...

[Kenu]

Depends on your income, but there are grants out there to help. Try contacting MS One On One and they can guide you. 🙏🐾. Ken

[MS_Indestructible]

check into Rituxan, it is the same as Ocrevus but is an off label use for MS. It has been around a long time and should be more affordable. I'm on it for several years and it has done wonders for me. I'm on Medicare and they only covers 80% and my cost was $12.00 USD. My HCP covers the cost of the infusion as an out patient procedure so there is no cost for that. Please check out my previous post & replies regarding Rituxan. Best wishes. I too have PPMS, I thought SPMS but I don't have relapses. Rituxan caused my MS to be stable for the first time since I was dxed in 2007

[ssdw1958]

I would call Ocrevus about there assistance with the cost. When I contacted about the cost and if I was covered (one) they told me about the cost and I asked if I was covered by my insurance they said yes. Then I asked if I wasn’t covered what would happen and they said they would cover it. So I would call them and if that doesn’t work out ask your doctor.

Good luck

[Kitsey]

Definitely contact Genentech. They have very good assistance programs. Keep us updated. Wishing you and your husband all the best!

[JeanieU]

Thank you so much, everyone. I called and spoke with Genentech today and signed up for their co-pay program which should bring our out of pocket cost down dramatically. Thanks, especially, for the info on Rituxan, I'll check it out.

[JMWCO]

Genentech has two types of assistance programs. One that is a co-pay assistance up to 20K per year and another for more assistance. If you go ocrevus.com/patient/support... that will ask you a series of questions to figure out which you qualify and then you submit and two weeks later your info appears in the mail.

I submitted as per the hospital that did my infusion suggestion for the co-pay. My insurance covered by first infusion 100% (about 65K) and i just had my 2nd part of my 1st dose.

I will tell you that when I called my insurance company at the beginning of this process to talk about what meds were or were not covered they only gave me details on what they covered but they can be requested to review and to consult with your dr. as the dr. can ask them to reconsider - which mine did. Express scripts from my insurance gave me a list of 7 organizations that offer payment assistance to those with MS but they said to work with the drug manufacture first as well as a resubmission to the insurance company before reaching out as those groups have limited funds.

Good Luck!