I've been on here a lot over the last week! I'm so thankful you all are here. I can't tell you how many times I've cut and pasted excerpts out of some the posts y'all have written and put them into a word doc to give to my husband to read!
He has a very short attn. span and doesn't like to read more than a few sentences at a time. So when having him read anything about MS, I have to make sure it's short. He apologizes for being sidetracked or just not being able to focus on an entire article all the time. So I explain the article and its contents to him. And he's good w/ that, for the moment.....because along w/ the ADD, he has memory issues. Pretty bad, actually. And it's pretty frustrating for he and I both.
That all being said, my venting is about him FORGETTING that I have MS! He knows. And is very supportive and empathetic to my symptoms. But then he constantly wants to hang out until late on the weekends after the baby is asleep (she's 3 but still our baby, lol. And it's our only real time together). Unfortunately I'm no good past 7pm at best. I'm up before 5am every morning to get to work by 6:45. I'm home by 4pm to play w/ our munchkin and make dinner, but he's not home until between 6 and 8pm depending on the job he's on and the season, weather etc...Or he'll want to do yard work together, or hang out in the evenings outside in the middle of summer.....and then he practically pouts when I say I can't or won't....sigh...We've known each other since we were around 8 or 9 yrs old. We've always kept in touch through the years and in between different relationships and living in different states. He's always been my true love and we were married 3-1/2 yrs ago (we are now 45 & 46). So I love him w/ all my heart. But I'm ready to knock him down sometimes!!!! How many times to I have to remind him that I have MS? He helps me w/ some of my shots! He KNOWS I have it....but he "forgets" that it comes w/ symptoms, that I remind him of on an almost DAILY basis.......UGGGGGHHHHH!!!! Okay, venting complete. thank you. Continue w/ your regularly scheduled program