My MSAA Community
3,444 members6,406 posts

Balance - I miss it

Balance - I miss it

I took a REALLy bad fall last night trying to carry two small flower pots. I can not shake the dizzy feeling. I would like to feel GROUNDED again!!!!!!! My body bruises make me look like a bag of skittles. EVERY color of the rainbow!!!!

Newly diagnosed and overwhelmed,. Will the Aubagio help with the dizzy, photophobia, phonophobia. If not I need some help, and tips on how to deal with spinning all day every day. THANKS!!!!

7 Replies
oldestnewest

Oh, that's scary, I'm sorry you fell but glad you weren't seriously hurt. Have you been diagnosed with vertigo? Are you taking any meds for it. I have no experience with aubagio, am on copaxone and hoping to start ocrevus soon.

I have bad balance/weakness but rarely feel dizzy and never get that spinning you describe, it sounds awful. I hope others chime in with suggestions.

I never carry anything up or down the stairs anymore. Even carrying in groceries throws my balance off worse. I use walking sticks when outside or am going to be walking any distance. In the house I am a wall, furniture walker.

I really hope you find something to relieve this symptom soon.

2 likes
Reply

Knear, I hear you! I had that spinning on and off for a few weeks. I would get something that felt like a lightening strike from my lip up across my face and then the spinning would start - just one short, hard spin around and only when I was standing. That eventually went away, but my balance has continued to deteriorate over 30 years of MS. SLOW is the word to help me with my balance. Eventually, you will find what works for you, too!

4 likes
Reply

That sounds terrible. I love the picture, maybe it’s time to follow Yoda’s advice.

“walk or walk not, there is no try.”

Seriously though, we all have to bend to the latest maladies imposed upon us. Do less, do it safely. I have to take many trips to do what I used to do in one.

I wish better times for you

Craig

5 likes
Reply

Check with ur neuro and pt for help with the the vertigo. There may be some good pt exercises that can help you. Good luck and be careful 🌈

1 like
Reply

I've had bouts of vertigo on and off since 2011, but wasn't finally diagnosed with MS until 2016. I've not been put on any meds yet for vertigo specifically yet, but did have some physical therapy after a particularly bad fall that resulted in a broken arm. At first the doc thought that it was just a contusion so didn't order any x-rays. But 2 weeks later it still hurt badly to use my arm to do anything with it. A different doc ordered x-rays. I'd been trying to treat a broken arm for 3 weeks with ice packs. No wonder it didn't get any better.😋 But the PT did give me some tips to help keep my balance when the vertigo is light by just holding on to nearby solid objects and to just sit down when it gets really bad. Maybe a PT could give you some rips that aren't so obvious. When that PT gave me those tips, all I could think was "no duh!" He was ok to get my arm back up to strength but not for much else. I've worked with other PT's before that for other injuries (unrelated to MS) that were great. I will start with another PT next week and this will be one of the questions I ask is for something to help with balance and vertigo.

1 like
Reply

I like your picture. I am sorry that you fell. It is very painful when that happens. I fell about 3 years ago 3 times in one week. The last fall I ended up having 2 staples in my head. Please try to be careful. I use a rollator for my walking, there are good things and bad things about using it the good thing is I always have a seat, I have a basket to carry things alright the bad thing is, I have to walk with it. I know that’s a good thing but it makes me sad that this is how my life has turned out to be. Alright it is one of those days.

1 like
Reply

Have your vitamin D level checked. I was horribly dizzy like that a few years ago. My Vitamin D level was dangerously low. Once I got that back up, the dizzy spells decreased.

Reply

You may also like...