Well, I saw Neuro Today.... & - My MSAA Community

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Well, I saw Neuro Today.... &

Jazzyinco profile image
7 Replies

Now She says she saw my M.R.I. & Looks like it's another weirdo auto-immune disease, she needs the L.P. & another M.R.I. of my spinal cord to see just what one... Well, my double vision in my Left Eye is now worse than ever before, I'm stumped!!!! I still have All The M.S. symptoms even PPMS... oy vey! this diagnosis crap is for the birds!!!! tweet, tweet! sheesh! LOL! will someone please DX me ALREADY!!!! :-( I would be better off just knowing what was wrong with me d ar nit!!!! :-0 SHE ALSO FREAKED WHEN I TOLD HER SOME N.P. NEURO WANTED TO ALREADY PUT ME ON TYSABRI & SAID I HAD A DX OF M.S. WHICH WAS WAY WRONG!!!! OH BOY! WHY IS IT SOOO HARD TO DX!?!?! OVER 80-AUTOIMMUNE DISEASES! YIKES! OH MY!

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Jazzyinco profile image
Jazzyinco
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7 Replies
Wizardsmom profile image
Wizardsmom

I'm sorry that it is taking so long to diagnose you. My diagnosis took 4 months but it felt like a lifetime! I hope there is a diagnosis soon in your future.

Kenu profile image
Kenu

I hope you’re diagnosis comes soon 👍. What a pain in the a~~! No fun in waiting 😡. Keep sharing and let us know how it is going 🤷🏼‍♂️. Best wishes 👍🐾😉 Ken

Midgey_Midge06 profile image
Midgey_Midge06

My dx took a year.

Peruzzot profile image
Peruzzot

I got jerked around for nearly 5 years. Hope yours doesn't take that long. To say that it's aggravating doesn't even begin to scratch the surface. When i first complained of symptoms a nurse practitioner immediately said MS. full fledged doctors spent the rest of the time trying to prove her wrong. !!!!!!AAARRRHHHH!!!!!!

greaterexp profile image
greaterexp

So many of us have gone through a long wait to get a clear diagnosis. My daughter is now starting that long process, and I hate to watch her go through it. However, since so many symptoms overlap, I’d want to know for sure so I’d get the appropriate and most effective treatment.

Keep us updated about the process and results. I’m sorry it’s so hard.

my dx took 5 months, he thought MS but tried to prove his thoughts wrong. He ran every test known at the time, in the end he was right from the beginning. I would rather they run all the tests and give me the correct dx than to assume and be wrong. Be patient, it could end in your favor. But it can be very frustrating non the less, arg! ~terry

cheshcat profile image
cheshcat

I hear you! I feel like I've been tested for everything under the sun and don't understand how they could still be ordering tests! I guess it's been somewhere between one and a half and two years now?

I was diagnosed with RA last summer. I thought FINALLY! box check marked and moved on with treatment for RA. Here I am back in testing for MS.

It's very frustrating, aggravating, and stress inducing. I've decided to just let it go, show up for my tests, and take their band-aides, and figure at some point they will figure it out. (I think????)

Good luck to you 🍀

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