I am new here, hello

[pamgarner]

hello, I am new here, me name is Pam, M.S. is an adventure to say the least, I've been diagnosed for about 5 years but now I realize I have had it about 15 years, it wasn"t until I went to a back surgeon that he found this, what a ride!

[pamgarner]

I am just waiting for financing for Ocrevus, my dr. said I won't regain anything I lost but I am hoping to stop it, new lesions in March 2018, I have been on Betaseron for 3&1/2 years, has worked until now.

[greaterexp]

You've found a great place here to find plenty of roller coaster ride friends. We're glad you found us, though I'm sorry you share the story of so many who went un- or misdiagnosed for years.

I hope you avail yourself of all MSAA has to offer and all this group has to offer.

mymsaa.org/

[bxrmom]

Welcome to the group pamgarner , sorry for the diagnosis. This is a great group of caring people where you can come and share and talk to and vent with. Look forward to getting to know you.

Jessie

[pamgarner]

thx for replying, I can tell this will be a great community for me, so nice to know that I am not alone!

[pamgarner]

my Doc. tells me , it will not regain anything I lost, but hopefully stop it.my problems are my legs and feet, and cognitive getting worse,i really think it's because I am no longer working, Something to be said good about work!

[Thressafaye]

Same here. I've had all of the symptoms for years but it took a mri to put it together....after a concussion. I wake up tired most days but am treated like I'm just lazy. Don't really want to talk about it to friends or family yet. Thressafaye

[pamgarner in reply to Thressafaye]

hi teressafaye! everybody's journey s different, but it's"" funny" how we all ended up in the same boat . My dr. has me taking Amantadine to fight fatigue, it's works for me. It was an old flu Medicine and prescribed for Parkinson disease, but in Ms. suppose to help "the tiredness", I have been taking it a year, it seems to help. Nobody understands this Ms. unless you have it because you look the same