lesions on brain from MS

[disconcerting]

Does anyone have them solely or primarily on their brain?

[greaterexp]

My MRIs showed no lesions on the cervical and thoracic spine areas - just brain, where I have multiple lesions.

[disconcerting in reply to greaterexp]

Thank you for letting me know. I checked out some of your posts and they’re great!

I feel so alone because i saw a picture of my mri and it looks like someone took a double-barrel shotgun to it. It’s so difficult to think clearly with the stress of raising a family solo and ms compounding my cognitive inabilities.

I do look forward to checking out more of your post.

[Kenu]

I have several in my brain 🧠 and a couple in my cervical . All have been stable for the last year 👍🙏. The brain 🧠 ones have always been the active ones in the past 🤷🏼‍♂️. 🙏🐾 Ken

[disconcerting in reply to Kenu]

Do you have problems with organizing thoughts or recall? Has it interfered with work?

I will keep you in my prayers.

[Kenu in reply to disconcerting]

I due really well with brain 🧠 function, it’s fatigue and limited use of right hand 🤚 and afo brace on right foot for foot drop😐. I was doing fine at work till Cancer and that finished off my working status and went on SSDI. Have been on seven different DMT’s and currently on Aubagio 👍. 🙏🐾 Ken

[disconcerting in reply to Kenu]

We should be limited to one disease per lifetime. I hope you have cancer no more.

I had the lovely optic neuritis in my right eye also. I mix up darker colors, but at least my vision is back.

[jimeka]

According to my doctor, I have a brain like a furred up kettle, also on my cervical and thoracic nerves.

[disconcerting in reply to jimeka]

I don’t mean to get personal, I understand if you don’t reply, but has that always been or just happened over time? I saw that you have been dealing with this since before therapies were around. Do you have any advice?

[jimeka in reply to disconcerting]

Sorry I didn’t hit the reply button, so reply is below.

[disconcerting]

Thank you for your reply. I have been very depressed. It seems that the majority of the MSers I’ve met have lesions in places other than the brain.

I wish you the well and will keep you in prayer...actually all who reply.

[jimeka]

I have PPMS, my doctors told me when dx that there was nothing on the market that would help me, so I never have. I am now 62, dx 9 years ago this October. They said I must have had it at least 20 years before dx. I live in the uk, ocrevus hasn’t been approved yet. When it does get approval there will be lots of people wanting to try it. I personally haven’t seen much evidence that it works for people with PPMS. I just have to trust in God that it stays where I can still look after myself and I can keep a certain level of independence. All I can say is, get to know your own body. Know your limitations, don’t be scared to admit that you are too tired to do something. Think about yourself first, and don’t worry what others think. You can get hurt a lot if you dwell on what you used to be able to do. Acceptance is a major part of having ms. Rest when you feel you need to, otherwise if not your body won’t like it. So listen to your body, enjoy what you can do, exercise the parts that can, eat as healthy as you can, including chocolate 🍫, as it is good for the soul, smile, and create your own happiness. Ask anytime, I am usually around, blessings Jimeka 🦋 🌈 💐 🤗

[disconcerting in reply to jimeka]

Thank you for the advice. I agree with chocolate being good for you and yummm. I haven’t learned how to insert the icons that you so lovingly decorated your message with. I am looking “more” upward and onward.

[janetb1968]

Hi I have lesions on brain, cervical spine and thoracic spine........ whoop! 😕😕😕🍦

[disconcerting in reply to janetb1968]

Are you in the states?

I wish you success with the Tysabri! It has been holding up my progression thus far.

[janetb1968 in reply to disconcerting]

Hi no I'm in the UK glad to hear your progression is halting xxx 😊

[Qt314grl]

I have 20-30 small ones only in my brain. My spine was clear last time. My next MRI is in May.

[disconcerting in reply to Qt314grl]

I don’t get why the spine causes mobility issues and wackiness to flare, but the brain causes random wacky. [ i don’t mean to sound so technical ;-)]

I hope your MRIs show no progression. Do you have memory or thinking challenges? Did you notice any changes prior to being diagnosed? What caused you to be diagnosed in the first place?

BTW Your son is both adorable and handsome!

[Qt314grl in reply to disconcerting]

So my biggest issue has and is still neuropathy in my feet. We know it is not peripheral neuropathy based on EMG testing.

I do have cognitive issues from time to time. It’s mostly a “search for the word” problem that makes me struggle to finish sentences from time to time. My husband noticed it before me.

My short term memory has suffered but who knows if it is MS related or tired mom to a toddler related 🤷🏻‍♀️🤷🏻‍♀️

Thank you for the compliment on my son! He will be 3 years old next month but that picture from his 6 month photo shoot is still one of my favorites.

[Qt314grl in reply to Qt314grl]

Oh and I have numb patches on my arm, hand and have had one sided numbness as well. Luckily very little weakness. Just slight issues with left foot.

[disconcerting]

Yes, i am seeking a new doc for a script. I hope for anything to help my mood and to help with pain would be a bonus.

I guess i was apprehensive because meds seem to “break” something else.

[CloverPrincess]

Yes mostly. I was horrified at my mri and thought someone drew them on!

It’ll be fine because you’re stronger than you think and can overcome anything.

[disconcerting in reply to CloverPrincess]

Horrified is the word i was looking for! 😁

My doctor teared up at my showing him my MRIs—reinforcing the fear. I don’t know if it was because he knew there was nothing that could help or me finally understanding the degree of damage after 14 years.

My diagnosing doc’s assistant was amazed that I was as proficient as I was. I went a long time undetected and my coworkers thinking i was on drugs or something (very humiliating).

[CloverPrincess in reply to disconcerting]

I understand that. I believe people thought I might have been lazy for lying in bed all the time before! I still do but I do feel people don’t have awareness of MS. Stay strong 💪 I’ll try to join you

[Fancy1959]

Disconcerting, it's Fancy1959. Unfortunately lesions of the brain the cervix and the spinal cord. They are in the process of creating havoc on my entire body. Pretty much worse of all though is my cerebellum has been attacked by my MS and has atrophied away from the sides of the cerebellum cavity by at least 30%. And I wonder why I had such issues, especially with my balance. I keep fighting it every day, because it's the only thing I know to do. But I've had nine concussions now in my life and it scares me to think that the 10th could be my last one. I've had two since Christmas in fact.😞😩🤕

[disconcerting in reply to Fancy1959]

Fancy1959, We need to come up with a designer hat of some sort made from a thin protective helmet to protect your precious noggin! I am so sorry to read what you are enduring.

My mom had her third surgery for removal of a tumor that presses on her cerebellum. It keeps coming back and after two successful, yet stressful surgeries, this time they were more aggressive since she is getting older.

She was in denial and nobody wanted to perform the surgery. Finally, one surgeon cut it *all* to include some of her vocal chords and facial nerves. She is left with double-vision, balance issues and a slew of other complications.

I hope you have a successful therapy that stops its progression. You will be in my prayers. 🤛 Stay strong.