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Has anyone been to see (or know of anyone who has seen) Dr Jose Luis Diaz Barboza?

I've recently come across one person (whom I have spoken with) and another possible family member of a friend that goes to that area for treatment.(She is in the process of checking into it when I brought up the subject. I'm doing some research on the doctor and looking for feedback.

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Is that the Stem cell doctor in Mexico? Are you considering stem cell treatment? Blessings Jimeka 🦋 🍫

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IS IT?! IS HE? Exciting stuff might be going down! 🍿 🍫

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jimeka, yes that is the stem cell doctor in Los Algodones, Mexicali. I have recently been put in touch with another MS patient who has RRMS that has undergone the procedure. They are local to me just about 10-15 miles to the north of me. It's NOT the stem cell procedure that I am aware of whereas they destroy the immune system with chemo and then replant stem cells. The procedure is injecting them all over to spread them out throught the entire body. I spent about an hour on the phone with her on Tuesday (I never talk on the phone that long) now I am starting my research to see if I am even going to consider the possibility. She told me that she does not ever remember feeling better than she does now. I have more questions for her but I wanted to do some research on my own before starting my complete inquisition! LOL I know that right now I couldn't manage it fiscally, travel expenses and being in another country I would have to pay for the procedure. However it isn't like out of sight or anything. Just would need to do some fundraising if it even comes to that. I've been doing some online research and word of mouth. I'm not ruling it out, at all. Especially with the issue of my coverages trying to reject my Ocrevus.

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Wow! I have been going downhill this year and we already go to Algodones for eye glasses and RX. It is about a 3 hour drive from me. Keep posting about this, please!

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I certainly will SueAB

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Yikes, I didn’t know they were trying to reject your Ocrevus 😭 The person with MS, were they also on Ocrevus?

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No she wasn't on Ocrevus. In not sure about her previous therapies yet. We made personal introductions and doctors and such. I do know she told me that they did a JC check on her and hers was a high level. Oh wait, now I remember she did tell me she didn't want to poison herself with something that may make her worse or kill her. So she hasn't had any previous therapies because of the risks.

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I received a letter from Medicaid (my Medicare "extra help" when your condition eats your lunch money) 3 weeks after my last infusion that my pre approval was denied. My infusion center is trying to fight it, still to no avail.

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Oh no! I hope it gets turned around, that’s crazy 😭😵

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I talked to the center again today and was reassured again that I wouldn't be billed. According to my Medicare statement 10,000 they did not pay 😱

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No trick or treat either a real nightmare within another nightmare

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I would call the drug rep and see what can be done about the next dose.

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I have an appointment with my MS specialist on the 20th. We are going talk about it then. He has talked with the reps for me in the past and I haven't even ever had to fill out any paperwork for the drug companies to help with financing if neccessary. He is a good doctor I am blessed to have him In my corner. I know it's rare for MS to be life threatening, but I remember him looking at me (when I was recommended to go on Tysabri regardless of my high JCV count) I wanted to know why, when the chances of PML were higher than me being in a fatal car accident, which I almost did before. His answer was, with the extent of the damage and aggressive as your ms is, that one more tiny little bit and.... that's it. I have consoled with my colleagues and we think it's the best option. This was before Ocrevus and we did try some less invasive prior. I think that ocrevus is pretty much my last option and I'd that fizzles then... I would like maybe to have a back up, or if it shapes up differently, who knows.

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Oh and I also forgot to mention it was denied for "not medically necessary" yhats why I explained my situation a bit further cause its completly rediciolus

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I hate being a downer, I don't mean to, no wonder I'm such a mess, I try and pretend I'm not s complete disaster but then up comes the MonSter, as Jazzyinco so eloquently deems, rare's its ugly head, once again. I'm pretty comfortable sticking my head in the sand pretending it's ok.

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I'm a pretty good in the sand, head sticker, also

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That’s insane. It costs as much as whatever else they would put you on, you’re suppose to be on something so yes it’s medically necessary! It’s so stupid. They would rather cover your ICU bills 🙄 🤦‍♀️

You’re not a downer or a disaster.

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I second that opinion

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Have you applied through the Ocrevus support program? They give me my o for free.

Mary

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No because I've been on Ocrevus since May of 2017 and the last infusion was the first that was denied and it was 3 weeks after my infusion I received a letter in the mail that pre approval was denied.

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It seems it is tied to income. I do not think your income has to be that low when the cost /year is $65000

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More details plz!

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I'm working towards finding out all the details, pros and cons and in search of those who may have been down that road.

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Your post may get more responses if you tag it with “stem cells”.

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How do I tag?

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I think you have to go edit it, and towards the bottom it will ask you if you want to add tags to your post, and just type in stem cell. I’m using the app, btw, so your edit experience may be different.

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It only let me do topic, maybe I need to look into the app

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Topic is probably what I meant! The app is very frustrating.

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It only had a limited selection under topic unless my scatterbrain missed it... lol which is highly likely

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Be careful Allen! Find some reputable information on him and his work, check the facts, ask your doctors.

It is just my opinion and I do not know anything about the doctor but if what he does really works then lots of doctors would be doing it, or at least researching it.

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Morllyn, thats what I'm working on and one reason I'm posting the question. It will be a long road before I would get to that, I'm begining my research.

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Sorry, I am sure you are a smart young man and will research him well.

I have seen many people, who want to believe that a certain person/procedure can cure their illness so badly that they will pay anything. Most of us would give just about anything to have ours, or a loved ones pain and suffering taken away but to often it is just a scam artist fleecing people.

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Morllyn, oh absolutely, without a doubt! That's why I'm posting and looking for answers from trusted sources. I'm just in the preliminary of my inquisition. The other part of that as well if its not even a complete cure but merely an effective treatment with no side effects it's worth my looking into. Because I saved a picture of a post on here recently of a skeleton in the corner with the caption, after the medicine commercial lists the possible side effects.... I feel like that skeleton. Then I have the opportunity to speak with an RRMS patient that has undergone the procedure and tells me about the no side effects and how great she feels, well, it's worth a look see, not jump, just look. Espically since i was willing to jump on Ocrevus the minute after I read about it. I'm not sure how it will all shape up, its worth the time to start asking the questions and checking out what's going on. Also, I started by asking Google and found an ABC article from 2007, over a decade ago and still trying to find a negative report. I'm just getting started and my data plan has reached its limit so it is going to slow a bit more for a week till it renews. I have an up-and-coming appointment with my specialist so I'm trying to get myself prepared for that meeting. My appointments are really like meetings and are not unusual going 2-4 hrs. He NEVER rushes our visits, EVER!

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Hi Allen5280... here is a link to an ABC news story about the doctor from a few years back. abcnews.go.com/Nightline/st... Also, here is a Facebook page link for his clinic. facebook.com/Dr-Jose-Luis-D... There are several reviews on the Facebook page.

It seems that the doctor has multiple techniques depending on how much you are willing to pay. Sometimes he uses the stem cells from a lamb which personally I would not do. I'd be worried that my immune system would mount an attack against them because they are foreign.

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I did see that story Raingrrl, I'm working on trying to cover all the bases possible. I have a friend who thinks one of her family members may be seeing him for ALS

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Oh and also, with the woman I have spoken with, now they are giving sheep stem cells to begin and the second are now human. I'm looking at things like the pharma companies use cells from other animals, for example Rixutan the predecessor to Ocrevus are derived from mice cells. Ocrevus is from human cells hence the difference

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It could be just me, but infusing a chimeric med that has mouse cells in its origin seems different than injecting stems cells from a sheep. But maybe those stem cells are chimeric too...I don't really know much about the process.

If I were interested in this process, I would look for studies that support the idea of using the sheep cells and that rejection rates are low. One of the things I've read about stem cells in MS patients is that its not a one-time and you are done thing. So there would be an ongoing expense potentially.

Most of the reviews I found for this doctor were people that had pain and/or joint problems where the stem cells are directly injected into the joint. There were a couple of people that claim he cured the COPD.

Not trying to dissuade you...just giving you some things to consider.

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I appreciate it absolutely Raingrrl. I do have one advantage right now, is actually having contact with another MS patient whom has undergone treatment there. That's what sparked this whole thing was she is close, the same age and the lines of communication are open. I agree ther is always the possibility of something not helping. It is a great out of pocket expense but if I can't get my Medicaid to do their part my Medicare left it with 10,000 unpaid. I talked to my infusion center again today and they reassured me I wouldn't be billed, but what about my next, and the one after that? So there are alot of questions and are his methods different than others, just beginning to try and find out details and get all the answers to those questions.

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Ocrevus uses both mice and human. where you are right Rituxan uses 100% mice cells. I might need to change my middle name to Mickey, LOL

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Do you get uncontrolable urges for 🧀? I do as long as its on a pizza, pasta and a salad! Maybe I am part 🐀 now too..!

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come to think, I used to like shredded cheese but now I seems to be partial to block cheese, and cheese on chili with chopped onion as well.

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Oh how I used to love frito chili pie... that's just chili, cheese onions and shredded cheese on top of broken frito's corn chips lol.. completly off my diet now lmao

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sorry, I can't help any

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Noyhings to be sorry about MS_Indestructible, I'm just putting my wiskers out to feel out something that I have been made aware of.

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I haven't heard about this doctor. My cousin's friend with MS traveled from Canada to a clinic here in California to have a stem cell procedure done and the outcome hasn't been what she hoped and was told might happen. She's had MS over 20 years and it's progressively getting worse. The clinic told her there was no guarantee with the outcome but she wouldn't get worse. That unfortunately hasn't been the case. Family and friends pray that may change because it's only been about a year. So do your due diligence has you are. I wish you the best in your research.☺️🙏☺️

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Thank you Guava69

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I read the ABC story. It sounds like the people with instant relief are getting some thing else with the stem cells. I’m curious as to why this clinic? There’s one in Florida and Utah, but I think those only do human stem cells. Is there an up side to lamb?

I’m not interested in this for myself at all, and I’m not asking to judge or rain on anything, but now I’m curious as to how this is marketed and compares to other clinics with similar offerings that may be closer to you.

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Well, the first I even considered any type of stem cell is when the information about the MS patient that lives close to me had done. The second thing that I was told is that she was doing really really well and was it ok for my phone number to be given out. I said ok and I recieved a call from her on Tuesday. From her brief description that she's no longer on any medication for anything any longer. That she is currently raising the money for expenses to tie her mother (I don't remember what she told me about mothers condition, not MS) for her mother to see the Dr. That and I haven't heard anything positive out of stem cell treatments in the US. I did not realize there were any in the US until I posted this. The only stem cell I had heard about was the one they destroy the immune system with chemo and then put the stem cells in after. I completly dismissed any stem cell deals after that. Quite honestly, I didn't even bother looking into it at all. Also, no two methods are alike and doctors are not created equal. So it's why I'm trying to start research to find all I can about it now. I'm trying to find out what I can.

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Ok! There are some threads here with people talking a little about it, but no one having it done that I’m aware of (except recently my family member, but not for MS).

There’s one in CA doing it also, Dr Pompa had him in one of his you tube videos. There’s one in my state doing it also, but I never called to get the info.

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Whatever you choose, we're behind you! I'm grateful that you're willing to update us about this. I'll pray you get clear answers.

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I too was denied for Ocrevus stating it was not medically necessary. Insurance actually said i needed to fail one more of their drugs. 😒 finally got it for free. NEXT dose is 6 months. I need to start looking into that one. And they wonder why we are so sick. STRESS, INSURANCE STRESS

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