I have spasticity... Yay!: I saw the neuro... - My MSAA Community

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I have spasticity... Yay!

erash profile image
18 Replies

I saw the neuro ms specialist PT yesterday. Discussed my progressively worsening long list of symptoms and she did an assessment and believes most of the symptoms are due to spasticity.

Since I don't have related pain, I didn't realize this was what might be going on.

Anyway, she feels I can significantly benefit from stretching, yoga, specific strengthening exercises (avoiding some others) and breathing exercises to aid my chest expansion.

I love the treatment plan and the optimism that I can improve 😊❤️🌈

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erash profile image
erash
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18 Replies
Morllyn profile image
Morllyn

Wonderful erash ! I know that makes you feel better.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador

Yeah! I think? Ok had to re read. Yeah erash 🎉😊😂🤣 it' early still. Love ya!

J🌠

bxrmom profile image
bxrmom

That's great news erash 😎💓

Jessie

greaterexp profile image
greaterexp

That’s wonderful news! It’s amazing what carefully planned exercises can do for different issues. My PT analyzed my gait, balance, and strength and gave me very specific gentle exercises. She even gave me another set to work up to on my own when the first set became easy.

I’d highly recommend that anyone who can get a PT evaluation to do so, no matter what level of ability/disability one has.

jimeka profile image
jimeka

I am pleased for you, now that you know what it is, I know that you will do the exercises. Put some music on and enjoy, blessings Jimeka 🦋 🤗

rjoneslaw profile image
rjoneslaw

I know what you mean. On April 2, I had my 6 month apt with the neuro rehab dr and my neuro dr and they told me my for my spasms I should check out this guy Trevor Wicken ‘s MS gym on Facebook and I told them I had been doing that for the past 2 months. It has been working

For MS gym you have to join the group but once you’re in the group you can see videos for exercises on any part of your body spasms to walking exercises, balance etc. He has a paid membership as well (free works for me)

I have posted some of his pdf’s on stretches in the past.

Also MS focus did an article which featured him as an MS approved workout website

Below is the link to the website

Https://multiplesclerosisnewstoday.com/2018/03/20/fitness-websites-for-ms/

erash profile image
erash in reply to rjoneslaw

Thanks! @rjoneslaw

I'm going to check that out.

I've started doing as recommended by the ms PT "adaptive yoga for MS"(YouTube) videos @15 min each focusing on different areas of the body

TonyiaR7 profile image
TonyiaR7 in reply to erash

I have been reading all these wonderful suggestions that everyone is giving to you for exercise. I like this ms PT ‘adaptive yoga for MS”(YouTube) videos. On YouTube I notice some chair Yoga routines that look interesting especially the days I don’t her to my yoga class (gentle stretch). Thank you!🤗

erash profile image
erash in reply to TonyiaR7

Thanks!

I am doing those

They r terrific!

suznj325 profile image
suznj325 in reply to rjoneslaw

About a month ago, I found the MS Gym while searching for relief when I was experiencing terrible neck pain, tingling, numbness... I printed the neck exercises... did them 2x daily... in 3 days... pain was gone!!! I have degenerative disc disease & see a spine doc on the morrow.... however... no one had been able to tell me what to do 'in the mean time' before going to the spine clinic!!

Qt314grl profile image
Qt314grl

It definitely better to have a known enemy than an unknown one! I hope the stretches and PT help.

Amore55 profile image
Amore55

Liz, I am sorry that you are dealing with this. No fun! When I get up in the morning my spasticity is so bad my head looks like a bobble doll and my facial features belong in a fright film as they move all over and I cannot control them. I have to hurry and get some meds in me so I can talk and look normal! 🤡. But I sure hope the plan you have in place will help. I will surely be praying for you. You have always been one of my favorites here. Take care and keep us posted. Love, Kelly xx

erash profile image
erash in reply to Amore55

thanks Kelly. that loss of control over your movements is really disconcerting. I hope you are not having pain with that but I do know pain is a big factor for you and hope that has eased.

TonyiaR7 profile image
TonyiaR7 in reply to erash

You are terrific! ❤️ Do as your Neuro PT specialist tell you to do. I will be seeing one to but today I have much pain today.

erash profile image
erash in reply to TonyiaR7

So sorry

Hope the pain resolved soon!

drnikki profile image
drnikki

I know stretching had helped me...Good luck!

Sukie427 profile image
Sukie427

You go girl! I find that constant exercise is the best thing for every symptom. I've fallen drastically behind due to injuries, but now I am going to start again. I hope that your exercise plan works for you and that you feel better very soon! Sukie427

TonyiaR7 profile image
TonyiaR7

I am happy for you! Especially the optimism that you can improve. 😊❤️🎶

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