Spasticity ( πŸ˜” ): I have it, mild... - My MSAA Community

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Spasticity ( πŸ˜” )

Jesmcd2 profile image
Jesmcd2CommunityAmbassador
β€’29 Replies

I have it, mild... Things do go flying from my hand, usually when I get tired, the worse it gets. My leg will spaz out whenever the blank it wants to!πŸ™πŸ€£πŸ˜‚ So I deal!

MSAA has a TON of great info on it! Read it! It's right here! ~~>mymsaa.org/ms-information/s... from medication to exercises to help!!!

Do you have spasticity? How do you deal with it? Inquiring minds want to know! πŸ€—πŸ’•

J🌠

positivewithms.com/an-illus... πŸ’•

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Jesmcd2 profile image
Jesmcd2
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falalalala profile image
falalalala

I watch with mild fascination when it happens to my fingers.

When it starts to get painful is when I stretch them- same with my calves or feet.

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply tofalalalala

πŸ™ owwuucchhhh...β˜οΈπŸ™πŸ€—πŸ’•πŸŒ 

cindyrn68 profile image
cindyrn68β€’ in reply tofalalalala

The finger spasms are odd. I try to pull my fingers back into a normal position and it just doesn't happen. Grateful they don't hurt. My legs on the other hand...

falalalala profile image
falalalalaβ€’ in reply tocindyrn68

My index finger crosses over the top of my middle finger which is weird because I can't make that happen when I try to do it on my own.

It gets painful until I force it back into position.

cindyrn68 profile image
cindyrn68β€’ in reply tofalalalala

I get the same thing! My thumbs also draw across my palm, straight not curled. Weird. Maybe MS is some kind of superpower? Just have to figure out the cool part.

falalalala profile image
falalalalaβ€’ in reply tocindyrn68

Maybe intimidate people for starters?

πŸ˜…There has to be a use for that ability.

rjoneslaw profile image
rjoneslaw

hope it gets better 4 u

kdali profile image
kdali

I guess I do πŸ€·β€β™€οΈ I’ve been stretching during rest breaks.

hairbrain4 profile image
hairbrain4

I have it mostly in my legs and hands. At night my legs just jerk as something scared them. My hands involuntarily let go of things. It used to happen at any given time. Now since I started Ocrevus it only happens between months 5 & 6 before my infusions when the drug is wearing off.

carolek572 profile image
carolek572CommunityAmbassador

Spasticity is always something that I deal with, Jesmcd2

Heat and cold makes it worse. I do take baclofen for it but in very low amounts. I does seem to help.

Keep Smiling :-D

bxrmom profile image
bxrmom

I have spasticity, mostly in my left leg. I had a blood clot in that leg in 2007 and after that, the spasms started. At first not too bad, but they became painful after awhile. My neuro had prescribed baclofen for it. Over the years, meds have been adjusted (added, dropped) due to the level of pain from the spams.

mrsmike9 profile image
mrsmike9

My left foot will get a bad cramp at the oddest times! The worst is when I'm driving. Have to pull off and massage it.

twooldcrows profile image
twooldcrows

i hear ya that is one of the bs with this thing living in us .it has a live of it's own but we just push back and do it anyway....yes sometimes have to really find something else and another way but i am going to win the fight ...hahahhhahahahhh..take care and great info...

Iona60 profile image
Iona60

Hi Jes! I've tried every medication out there for spasticity to no avail. Thru the MS rumor mill at the Ocrevus infusion center, a lady told me that her neuro had her on Magnesium for spasticity. Since then I have been taking 500 mg. It seems to be working better for me than any of the meds. Hope that you find something that works for you.

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply toIona60

Iona60 !!! How are you?? πŸ€—πŸ€— It's been forever!! Good hint on the magnesium! As long as it's working for you! πŸ€—πŸ’•πŸŒ 

Goldilockssearching profile image
Goldilockssearchingβ€’ in reply toIona60

Magnesium topical cream or foam also works. I don’t have them often in my calves but when I do, this calms it in 5 mins!

Iona60 profile image
Iona60β€’ in reply toGoldilockssearching

Thanks for the heads up. I didn't realize that magnesium comes in creams.

kdali profile image
kdaliβ€’ in reply toIona60

There’s a spray oil also, but it’s not slimy.

CV97 profile image
CV97β€’ in reply tokdali

Ha, I'm reading this thinking I should look into taking magnesium again to see if it helps with the stiffness in my feet. Then you mention the spray oil - duh, I already have this in the cabinet, but quite forgot it was there! Maybe I should start by digging that out!πŸ˜‚

kdali profile image
kdaliβ€’ in reply toCV97

Right?! I know I have some, but I’m not sure where I put it πŸ€¦β€β™€οΈ I use the lotion sometimes, mostly because it smells like cake 🀣

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply tokdali

πŸŽ‚πŸ˜‚πŸ€£πŸ˜‚πŸŽ‚πŸ€—πŸ’•πŸŒ 

kdali profile image
kdali

I’m going to comment again here, this seems to be a possible Kesimpta issue. Some had it before starting the drug and have increased issues now (baclofen not as effective) and others like me never had it before. And they say it’s the same as Ocrveus πŸ€·β€β™€οΈ Of course tons of others are just fine on it.

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply tokdali

Hopefully you won't have that problem!! πŸ€—πŸ’•πŸŒ 

kdali profile image
kdaliβ€’ in reply toJesmcd2

I do have it, but it’s entirely new. And weird.

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply tokdali

Yeah it is weird when stuff goes flying for no reason!πŸ˜‚πŸ€£ Yikes πŸ™ Have you started kisimpta yet? πŸ€—πŸ’•πŸŒ 

kdali profile image
kdaliβ€’ in reply toJesmcd2

I’m trying to be cool about it instead of mad when it happens 🀣 we still have dishes, for now. Yes, I started at the end of Jan!

Jesmcd2 profile image
Jesmcd2CommunityAmbassadorβ€’ in reply tokdali

Rubber gloves my friend! Rubber gloves! πŸ˜‚πŸ€£πŸ€—πŸ’•πŸŒ 

kdali profile image
kdaliβ€’ in reply toJesmcd2

🀣🀣🀣🀣

Sandydemop profile image
Sandydemop

Doing and then resting. Makes me slow down

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