Not Knowing my MS πŸ˜•: Good Morning to all... - My MSAA Community

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Not Knowing my MS πŸ˜•

RoseySawyer profile image
β€’11 Replies

Good Morning to all! I have been experiencing different symptoms here and there, on and off for a few weeks, they don't come all at once but it still worries me. I'm wondering if this weather is toying with my symptoms or if I'm truly going to have a first relapse. The feeling of not knowing is frightening.

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RoseySawyer profile image
RoseySawyer
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RoseySawyer profile image
RoseySawyer

Or second relapse***

Jesmcd2 profile image
Jesmcd2CommunityAmbassador

Good Morning RoseySawyer β˜• where do you live?😊 I live in down st. N.Y. We are just getting a touch of snow here. But 2hrs away, in buffalo they are getting slammed!!πŸ˜„ So glad I don't live in lake effect anymore!πŸ˜„

The 1st thing I'm going to tell you is. I'm NOT a dr! And on any and all cases of great concern, call yours!

MSAA has a great book out now about relapses. A couple of things it does ask is, so you have a fever? Stress? Has it lasted over 24- 48 hrs I can't remember. 😊

It's called mymsaa.org/publications/ms-... check it out. And we are always hereπŸ˜ŠπŸ’•

Jes πŸŒ πŸŽ„

RoseySawyer profile image
RoseySawyerβ€’ in reply toJesmcd2

Thank you, yes I have been stress but no fever. I'm to make a call to my neurologist this morning to see if it's something I need to get checked out, the other day I felt pressure on my rightside around my ribs. I don't think I ever had an MS hug but doing some researching I think the pressure I felt was an MS hug. That's a symptom I had never had until the other day.

Juleigh21 profile image
Juleigh21

RoseySawyer Sorry you're feeling kind of funky! I've had MS for 10 years now. I was having severe back and hip pain the last 2 weeks. I went to my PCP twice and after a lot of muscle relaxers, a couple of injections, and a lumbar MRI that showed nothing, I ended up with my neurologist who diagnosed a relapse and started the solumedrol. He and the head nurse both told me that in the future, I should ALWAYS start with them when I get new symptoms that last more than 48 hours. Who knew πŸ˜‚. I thought it was muscular or a disc. If I were you, I'd call the doc. My mother, who is a RN, has been lecturing me for 2 weeks now about self diagnosing. Good luck to you! Hope you aren't relapsing and feel much better real soon! Let us know how you make out.

RoseySawyer profile image
RoseySawyerβ€’ in reply toJuleigh21

Thank You

Royjr profile image
Royjr

Stay in top of it please, especially if they’re new and last any time. Don’t think that they’re not important, I’ve learned the hard way and now I’m paying for it with heavy steroids. Good luck.

RoseySawyer profile image
RoseySawyerβ€’ in reply toRoyjr

I will and Thanks for your response

ssdw1958 profile image
ssdw1958

You might be having a relapse but it could be the weather the pressure drops my legs can not working right. This past week the day before the snow storm came I could barely move my legs. The extreme heat and cold effect my legs and I get very weak.

ssdw1958

RoseySawyer profile image
RoseySawyerβ€’ in reply tossdw1958

I'm sorry to hear that, I really think it's the weather. Here in Virginia the weather has been an up and done rollercoaster

RoseySawyer profile image
RoseySawyerβ€’ in reply toRoseySawyer

Down***

agate profile image
agate

RoseySawyer , MS is like that for some of us. I've had MS for nearly 40 years now (diagnosed in 1980 but having severe symptoms starting in 1978), and I've just had to find work-arounds for the symptoms that pop up. Sometimes I can predict what will cause me problems but sometimes I can't. Extremes of heat and cold will give me trouble, and so will getting too tired or doing any one activity for too long. Infections and injuries and stress create big problems too. I'm afraid people find they just have to learn what MS will let them do.

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