An MS Fact!: I'm well aware of this... - My MSAA Community

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An MS Fact!

Jesmcd2 profile image
Jesmcd2CommunityAmbassador
15 Replies

I'm well aware of this problem. Oh it's not a fun one to have. Especially, if you can't stop. Depends you ask? Of course, here you go! ☺️

There are medications to help. And more information here.... mymsaa.org/ms-information/s...

mymsaa.org/ms-information/s...

What about you all? How do you handle it? Medication, depends? What about Botox? Anyone try that?

J🌠

TY positivewithms.com ☺️

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Jesmcd2 profile image
Jesmcd2
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15 Replies
greaterexp profile image
greaterexp

I never pass up an opportunity to use the bathroom, avoid drinking anything right before going somewhere, and have protective liners if I have to be out for long. Fortunately, my issues come and go. But then, I never know when they'll decide to flare up.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply togreaterexp

I take oxibutin, but there are times in the morning! Then the dog gets in the way, trip over the cat.. race over!🤣🙁🤗💕🌠

rjoneslaw profile image
rjoneslaw in reply togreaterexp

Like you I never pass up a bathroom.

When I know I'm going out I stop drinking fluids to cut down on the need to go. I also wear depends with a pad. I also take myrbetriq and I catheter 2x's a day.

I asked my doctor to prescribe the closed catheter (the kit) which I like because everything is enclosed and there is a bag so I don't have to use or touch a toilet

Ocrevus has also helped with my bladder issues

Kenu profile image
Kenu

I know the feeling. I always know where the bathrooms are and how long till I get there. Like others said I watch what I drink according to what and where I will be. Have extra undies and pants in the car just in case ex specially with travel 🧳. Haven’t tried any meds? 👍🙏 Ken 🐾🐾

TexasLawman profile image
TexasLawman

😢 they suck

pamgarner profile image
pamgarner

i know right?I know every restroom in a 100 mile radius!If i am leaving the house,don't drink coffee,soda,juice.and going from hot outside and air conditioner inside and reverse,so here is the deal walmart,when I enter ,get out of my way going straight to restroom!or someone's home:)

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply topamgarner

🤣🤣

ck722 profile image
ck722

After my RP my watertight integrity vanished. I live on a well fertilized wooded 10 acres. Now I have many calling cards left by the local coyotes. It seems we are in a territorial competition.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply tock722

Dare I ask who's winning? 🤔🤣🤗💕🌠

ck722 profile image
ck722 in reply toJesmcd2

Well, I merrily traipse about where I will in the daytime and the yelping bad boys lurk about at night so guess it is a timeshare arrangement of sorts.

JTZES profile image
JTZES

For men there are 2 helpful medications. Flowmax is really good but causes fatigue. Rapaflow is the other. Doesn't work as well but has less side effects.

Jesmcd2 profile image
Jesmcd2CommunityAmbassador in reply toJTZES

That's good to know! Thank you! 🤗💕🌠

carolek572 profile image
carolek572CommunityAmbassador

When I am out and about and I am not sure of where the bathrooms are, I wear adult protective underwear (APU). It helps and has saved me on a number of occasions. When I forget to wear my APU's, I have regretted that. :-D

MarkUpnorth profile image
MarkUpnorth

Tried the meds, caused more problems. Learned to manage by keen sense of next bathroom or deserted trees. Did the depends thing, the catheter thing....BUT, now that bathrooms that should be there as part of the survival plan, ARE CLOSED due to Covid-19, so it's a whole new ball game. Learning all over again!

Midgey_Midge06 profile image
Midgey_Midge06

Always Discreet Boutique - cuz they r pretty...

Nah cuz they came in handy driving across the country

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