Today's Neuro Appt.

[CalfeeChick]

Began at 2:33AM with Hubby rapping on bedroom door frame saying "Get up, you said you could be ready to roll by 3:00AM! Ok I'm up, putting on warm slippers because floor is cold. Those slippers saved the day! OK I was ready to roll by 2:56AM and proud of it. I organized as much as I could last night. I took a pillow and put on floor of 4Runner, blanket over legs.. coffee in container .. He forgot his coffee, we had to stop for gas (what, you didn't do that yesterday on way home from golf?) Ok, we made the 90+mile trip to San Francisco UCSF MS Clinic ahead of the daily commute by 5:00AM. We went inside of building and while we waited I wrote notes from my journal of how yucky my legs and feet of been since first of Aug. Felt I was starting to go backwards..

Enough of boring details. Feeling pretty good, but feet were still numb, cramps and spasms in toes. Left those warm fuzzy slippers on.. I was first appt of the day. Dr. in good mood. Surprised to see hubby have to help me up. (I love that the drs come out and get their patients personally!) I really did struggle to get to exam room. It all got better from there. We discussed all the possible medication changes, DMT's and updates available.. Dr. was pleased with my research, knowledge of some meds.

We decided to increase dosages on all the current meds and he wrote a script for LDN. So excited to get started.. I would sure appreciate any of you taking LDN to please send me a link to a compounding Pharmacy. I found one only 10 miles away, they want $72. for a 30 day supply no matter what my doctor's RX says. It says quick release, 180 capsules and 4 refills. So I will continue looking for pharmacies tonight on the net. I mentioned to my Dr. that it seemed silly to write a script for 30 days 60 tabs at 2 a day and he sent rx to my pharmacy increased the amount of an RX.. Do we not have 31 days this month? Anyway, that's how my check-up went.. and I wore the slippers out to breakfast after! Tonight, I have increased the Baclofen and the Gabapentin. Feet still yucky, I'm hopeful for better days ahead. Lynn

[Diva1976]

I'm glad your appointment went good CalfeeChick. I hope with the increase of dosages you start to feel better!

[StacyHayward]

Sounds like a productive visit!

[mrsmike]

Better days are coming. Keep your chin up. We're all pulling for you. Up at 2:30 am? That alone would make me proud!

[CalfeeChick CommunityAmbassador in reply to mrsmike]

My hubby age73, has lived his life sleep deprived. Worked in grocery business 27 yrs, all shifts, then became painting contractor at 40 something. He’d work all night so he could go golfing in am. He still gets up around 3:00AM to go to gym because he likes to work out and enjoy the pool to himself. He does snooze allot in recliner 😴😴💕

[erash]

CalfeeChick

I hope the LDN gives more relief! Is UC Davis near you? I would think they'd have a reliable compounding pharmacy.

I enjoyed reading the tale of your adventure. I want to see a photo of the fuzzy slippers 😊

[CalfeeChick CommunityAmbassador in reply to erash]

UC Davis is within 50 miles and not on the list I found on the internet of nearby facilities. I did find one that is also in Sacramento area. Spoke with the Phamacist today and will be taking in the RX tomorrow. I'm excited to try this.

[Morllyn]

Good thoughts and wishes that you feel better soon CalfeeChick .🌞🌈🌻🍁

[greaterexp]

CalfeeChick , I’m in awe that you could write so cheerfully with a 3:00 AM wake up! I’m so glad you had a great doctor visit, and pray you find a better deal for your meds.

[jimeka]

CalfeeChick i want to see those slippers please. Glad it went well and I hope the increase in medication suits and works. Blessings Jimeka 🦋 🌈 🤗 🍫

[SometimesCrazy]

You are my hero for even making it out of your bed by 3:00. Best of everything you to you. LDN huh? Never heard of it.

[CalfeeChick CommunityAmbassador in reply to SometimesCrazy]

Low dose Naltrexone

Used in low doses to slow Ms progress. Blocks some nerve receptors and releases endorphins. Generally no covered by health insurance

Lowdosenaltrexone.org

[Iona60 in reply to CalfeeChick]

CalfeeChick I have had LDN in the back of my head as an affordable treatment if my health insurance ever bails and I can't get a regular DMT. Are you using this independent of, or in addition to, a DMT?

[kdali]

Glad it went well! 🎉

[Nom_De_Plume]

@calfeechick

Awesome! 🏆 You get an award for all of your efforts and preplanning to make this visit a success. I hope the LDN gives you the relief you are seeking, as well as the other med adjustments.

Glad you and your hubby are a team, despite his human weakness!

Awesome photo too. Is that from today? I love the misty quality to it! 😍

[CalfeeChick CommunityAmbassador in reply to Nom_De_Plume]

I think I'm still on a little high from such a good visit. I wish the pic had been from yesterday, I just snagged one from the internet. Most of the bay area, even inland to our house is somewhat smoky from terrible fires in the North Bay area. Winds have been blowing our way, It's tolerable and we are supposed to get light rains tomorrow night, which will be big help.

[Nom_De_Plume in reply to CalfeeChick]

@Calfeechick

Oh, right. Yikes. There must be smoke blowing everywhere! That’s awful. Can you go outside? I bet asthmatics are having a tough time. I hope the rain comes soon, and plenty of it! 💦

[CalfeeChick CommunityAmbassador in reply to Nom_De_Plume]

I'm more fortunate than others from having been athletic. bother the eyes.. Clearing today as our hero firefighters are making good progress.

[suzy20]

CalfeeChick

You must be wiped from such a long trip! I am so happy to hear it was a good visit to UCSF, and love how supportive your husband is

[CalfeeChick CommunityAmbassador]

I am blessed & spoiled in many ways. I do have times I need to remind myself.