I did remarkably well (yay!) during the hurricane and the week following when no lights/AC but I crashed for a week after that--really dragged.🐌
Then, suddenly, my energy was turned back on 💡Family warned me not to overdo it now but because I never know when I will be back in snail mode, I feel compelled to "do" 🔋
Anyone else get on this hamster wheel? 🐹
I really dislike that it takes so long to bounce back, often from very little routine change, and always worry, this time I won't 🙄--I'm a congenital worrier 😱
Thanks for chatting 😎
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erash
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erash Yes, I can sympathize with you on this. When push comes to shove, I seem to get an adrenaline spike that will carry me through. Then I get slapped down for days. Sometimes, I even go into an exacerbation.
It is so difficult to explain to my family and friends that the symptom of MS that I despise the most is the fatigue! I try to make sure that I'm home or finished with my major day activities by 1 pm b/c anytime after that the fatigue might hit and do me in for the day. It's hard to drive with tears in my eyes b/c I'm soooo exhausted 😩. So yes erash , I push myself cause I know that energy will deplete rapidly when it depletes!
Like you, I do as much as I can when my energy is up 👆because I never know when it will bottom out and not come back for a while. I too am a congenital worrier 😰.
I'm so happy your power is back! When I feel the power going out it's awful! So far today I'm okay, but I know the past two days I haven't had much. Even had to nap because of the fatigue.
That makes me a congenital worrier too. Sure sounds better putting it that way instead of calling myself a worrywart.
erash you are guilty of what we all are--when you're feeling good you overdo everything thinking that the other shoe is going to drop, and sure enough, the MS raises its ugly head and smacks you in the face with the fatigue, the weakness, etc. etc. We were still living in South Florida 12 years ago during the 6 hurricanes we had (including Francis twice) but I did not have MS yet, although that was also the banner year during which my husband had his stroke. Even when I didn't have MS and I still had one of my kids living at home, as soon as we got the power back I started doing more than I physically could and lived to regret it, so I can't even imagine what it would've been like with the MS. We all need to stop trying to do too much, no matter what. We end up paying for it later with flares or a full-blown relapse, and then have to fight our way back. That price is way too high.
We were in Fl for those hurricanes too. Lost power for 12 long days. I also didn't have an MS diagnosis yet. Although I likely had MS. Perhaps it hadn't progressed much then or because I was working full time, I just forged through and didn't attribute symptoms to MS.
Expectations are funny things. Now if I hiccup I wonder if it's because of MS 😜
Understand what you're saying, erash . My husband and I had a long chat yesterday about this very thing.
That all said, I'm happy to hear you are feeling more like yourself. 😊 I still move at a 🐌's pace, and to be honest, I do better slow and steady than overwhelmed, overscheduled, and trying to prove I'm 'okay.' So take care! 💕
I'm glad you got your power on to go with your electricity. Lol. I understand your thoughts about overdoing. With this crazy disease we never know if energy will last from your to hour much less day to day. We just enjoy it while it last then pay the price. I've been blessed with a few good days lately but the plug got pulled yesterday and into today. I sure hope it's turned back on for physical therapy in the morning. Enjoy it while it last.
yes, enjoy it while you can, those blissful, near-normal spurts when you almost forget the weight of MS. I say ride it like a wave doing the things you love ❤️ not the mundane chores of daily life. Don't waste it. OK, maybe don't take it to such an extreme that you are utterly exhausted 😩 and depleted.
Today, I am so tired that I have done zero. 🙇🏼♀️ Zilch. Nada. Had invited my parents over for dinner but had to reschedule. 😡 I hate it when this disease affects my family. Have not experienced it to quite this extreme before (where I'm struggling to stay awake all day) so I'm a little worried. Didn't do that much yesterday so this is a little surprising. Anyway, I'll see what tomorrow brings!! Hope your energy lasts longer than mine! 😀
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OK, maybe don't take it to such an extreme that you are utterly exhausted 😩 and depleted. 
Looking on the bright side -
bit of a set back
Back MRI is FINALLY scheduled
