Log in
My MSAA Community
3,837 members7,506 posts

MS eye problems webinar

There was a very good webinar last evening on eye problems sponsored by CanDo MS (I think it will be archived on their website). Thank you jimeka for alerting me to this.

Some good info on the use of OCT testing, the accessibility function on iPhones that can bold and enlarge print, and the fact that MS can affect vision and yet even neuro ophthalmologists may not be able to detect the progressing damage with the sensitivity of current diagnostic testing.

15 Replies
oldestnewest

I have had some problems with my eyes from the very beginning but no ophthalmologist can find any damage. When I am hot or stressed my left eye gets the feeling of a film over only the left side of it, sometimes my eyes get blurry. I have been to a few doctors but they never find anything.

This last time I told my ophthalmologist that I wasn't just imagining it! He said that there could be damage being done along the optic nerve behind where he couldn't see.

5 likes
Reply

Morllyn

they discussed cases EXACTLY like yours last night. With ON there's sometimes a loss of central vision that causes blurriness and being over heated can cause worsening. I hope the archived webinar becomes available. I think you'd be abe to relate to the symptoms they discuss (I know I could and my eye exams are normal too)

5 likes
Reply

Thanks, erash. I've watched a few of the archived CanDo MS videos and have been helped by them. My neuro turned me on to them last year.

I have been complaining of blurred vision and eye discomfort in the afternoons/evenings for over 6 months now. I even went back to Costco repeatedly, telling them there was something wrong with my new glasses. They recommended I return to my eye doc to have my eyes tested again. 😉 I did. The prescription hadn't changed, but it was apparent to the opthamologost that my eyes had become so dry (progressing as the day wears on) that the dryness was distorting my vision. Just another thought...💕

4 likes
Reply

Tutu

My eye dr said dry eyes too

The Blink drops made no difference...hope you get benefit tho

When I explained my problem to my neuro nurse practitioner she said it was MS related retinal nerve deterioration

1 like
Reply

I'm sorry to hear that, erash. Did your neuro have any suggestions on how to prevent it from progressing? 💕

1 like
Reply

Tutu

As per the webinar, the best defense is effective DMTs that help the entire nervous system.

2 likes
Reply

Thanks erash for watching and gleaning from it. Much appreciated blessings Jimeka 🦋 🌈

4 likes
Reply

erash, as always you're a step ahead in finding information most of us would miss. Thank you!

3 likes
Reply

erash Hope this webinst becomes available. My eye problems are never detected by the neuro opthamologists. I've seen 3. Last one encouraged eye drops, which do help some with the double vision.

2 likes
Reply

I thought of you Iona60

So sorry I didn't let you know about this before--I actually forgot until about 10 min. Into it

Consider contacting CanDo for the replay

2 likes
Reply

Is this the webinar you are talking about, scroll to the bottom of the page...May 9th?

mscando.org/online-resource...

1 like
Reply

kdali thats the summary. The archived webinar is now up.

mscando.org/multiple-sclero...

1 like
Reply

Erash, thank you!

1 like
Reply

I signed up for this Webinar too and found it informative.

1 like
Reply

thank you for timely info. I will watch webinar as soon as I get back from eye dr today or before if i can. Lost vision in rt eye this past week. initially felt like film over it also. Did have infection. but film feelin gotten worse.

Was cleaning out computer and noted notes going back to 08 trying to tell drs having a difficult time seeing. They kept telling me 20/20. But that is sitting in a lit room, not driving or reading a book

Blessing is that our bodies are so wonderful (believe that MS monster) in that despite the "holes" in my brain as I like to call the confluence of lesions, the other eye is compensating. However has cut my driving seriously and other transportation is expensive.

This Web site has kept my prayers flowing for all those struggling with afflictions and chronic diseases.

Peace joy and love as we prepare to receive the King.

Reply

You may also like...