36 year old mom and wife!: RRMS since 200... - My MSAA Community

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36 year old mom and wife!

The2ofus2733 profile image
9 Replies

RRMS since 2006. I think it has changed to progressive. I would like to know what everyone does for spasticity in the legs?

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The2ofus2733 profile image
The2ofus2733
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9 Replies
Fancy1959 profile image
Fancy1959

Hello The2ofus2733, it's Fancy1959 officially welcoming you this awesome chat room. You have found a safe place to come and ask question, express concerns, and talk two people to truly understand what you are going through because we've been through it ourself. I am currently taking baclofen for the specificity in my legs. Have you talked to your neurologist about the spacidity in your legs? There are several drug that could help but you need to go to your neurologist to find out what he prefers for you and what will work best with all the other medicines you might be on.

We are glad you are now part of our extended family. We were only a post away if you need us for anything at all. We have broad shoulders and what you and lean on or ask questions about what might be going on with your MS. I would like you to remember and together we are stronger! I look forward to speaking to you in the near future. Until then take care

Jake44 profile image
Jake44

Sorry to hear, but you may want to try MM with a high CBD %. LIke MS, everyone has different reactions.

Every morning my 8 year old knows when I eat breakfast as he hears my legs "spassing" against the island in our kitchen. If it continues, I'll take a little MM and they subside, but that's me. Ck with ALL your Dr's before trying.

I found just walking helps sometimes.

Hope this helps . Keep looking/trying things. You may be surprised.

The2ofus2733 profile image
The2ofus2733 in reply to Jake44

I do smoke MJ in the evenings, I take baclofen while at work, sometimes it's all just not enough 😔

jimeka profile image
jimeka

Hi, morning from he little island uk. I find that walking around with my Walker helps, it can feel like having 2 blocks of concrete at the bottom of your legs some days, blessings Jimeka 🦋 🌈

Kevin_McMillan profile image
Kevin_McMillan

Gabapentin and Baclofen, I can't hardly walk without them. I'm on 10mg 3-4xday, you might talk to your Dr and do 1or2 a day to start.

The Gabapentin is for nerve pain, burning, pins and needles etc.. helps pain too.

Morllyn profile image
Morllyn

Welcome to the group.

I believe that my MS has evolved into Secondary Progressive also. I go back to the specialist in April. Maybe I will find out then.

goatgal profile image
goatgal

The2ofus2733 You have empathetic company here! Your spasticity sounds so much worse than mine, so this may not be helpful at all. Years ago, I heard on the People's Pharmacy that yellow mustard helped with leg spasms. At that time, I was experiencing leg spastivity that would wake me from a deep sleep and last for very long periods of time. When I heard about the mustard, I thought why not. Oddly enough, it helps. A teaspoon or less, is all it takes. Now I keep those little restaurant sized packets on my bedside table. Thinking this over, yellow mustard is colored with turmeric and has other spices in addition...so maybe it is the turmeric. I dunno.

ddeadred profile image
ddeadred

Like Kevin, I take Baclofen & Gabapentin... 10mg Bac 1x morning, 2-10mg noon, 3-10mg evening... each time, it is paired with Gabapentin... When I crawl into bed at night, I put extra weight on my legz as that is when I get break-threw spasms sometimes. The extra weight and heat just helps...

Used to not be a walking drug store when I had MJ available, but life changes and it's no longer available to me... Believe me, lots of pills are better for me as I am no longer living with a mean person... MonSter attacks for 30 years, and I've finally learned to accept lots of pills paired with shots 3x per week--it is what it is...

greaterexp profile image
greaterexp

Welcome to a great place full of lovely, supportive people.

I have asked that question myself many times about transitioning to SPMS. I was diagnosed in 9/16 with RRMS and take Copaxone.

Are you taking any DMT?

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