Electrical Stimulation

Wondering if anyone has tried electrical stimulation as an alternative treatment for MS. So far I've had 5 sessions and my mental clarity seems sharper, my muscles feel comfortable, and I'm not as fatigued. My balance and spastic muscles are still the big issues for me after having this disease for 25 years. Curious to find out if anyone else has tried this. I'm at an age (71) and want to stay mobile as long as I can. The kind of electrical stimulation I'm getting is called Rife.

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  • I had e stim in PT to help with foot drop.

  • KarenUSA

    Are you referring to PONS? The under the tongue e-stim?

    If so, I'm very interested. Can u tell us more? Where available, cost and experience? How long have u been using it?

  • No, I hold a rod in each hand and current is felt. I see someone who does the treatment in his home. I've been doing it for 3 weeks while I'm a snow bird in Arizona. Don't know what I'll do when I go back home to Michigan.

  • KarenUSA I've used a Cefaly, which is a tens unit in a tiara for migraines. It did help with daily usage. I've not heard of it for spasticity. I'll have to ask about it.

  • This sharing of information has been great. I've learned the names of electrical stimulation treatments that I will persue when I get home.

  • Great subject KarenUSA l know some people swear by it, l live across from a chiropractor.๐Ÿ˜… And of course he swears by it. Me? Will never have it again ๐Ÿ˜๐Ÿ˜‘ Bad. Bad experience.

    But love to hear of great experience's!โ˜บ

    Jes๐ŸŒ 

  • Perhaps I'll have investigate chiropractors who might do this treatment.

  • Jesmcd2 do you mind sharing what your experience was?

    KarenUSA so it needs to continue routinely for best results? Do you know if there is a name for it I can google

    Thanks!

  • Google Rife electrical stimulation.

    I was disappointed that what I read wasn't very specific for MS. Also the information seemed dated. But, since I've been getting treatments I've felt less fatigued and mentally sharp.

  • LOL erash it's seems to be my luck of the draw with PT and Chiro's. I don't fair well. Ugh. The chrio they sent me to for my back, put me in a small rm, put a tens unit on my back and said be right back. After 5 mins they didn't come back and l was in excruciating pain, hollowed out,and no one came in. ๐Ÿ˜‘ Needless to say, l took matter's in my own hands! I got there attention when there machine went flying against the wall. I walked out and told in to KMA. ~shrugs~

    Jes๐ŸŒ 

  • Good for you Jesmcd2

    I love your spirit๐Ÿ‘Š

  • Well???? I flppen hurt! ๐Ÿ˜… And they never came back๐Ÿ˜• It Was NOT my fault it was on wheels! And the thing just went flying ~shrugs~ and l limped out.๐Ÿ˜ Someone mentioned sue, l said good idea. Never heard from them again. ๐ŸŒ  I don't get people sometimes.

  • erash posted above lol and thanks it's funny how not so funny then ๐Ÿ˜…

  • I 2nd erash's comment - love your spirit. What were they thinking? Or rather, weren't thinking?

  • Lol MaryBee58 l have no idea what they were thinking! Butler bet they didn't think that way again!!! ๐Ÿ˜๐Ÿ˜„๐Ÿ˜„

    Jes๐ŸŒ 

    ~Helpful Hint~ If put an @ in front of person of who your addressing, they will be notified. IE @ jesmcd2 *With No Spaces*

  • I've done it, and I've also tried a slight variation that worked quite well.

    The variant involved doing low-intensity workouts on a vibrating platform (I know, vibration stimuli and electrical stimuli are not the same thing, but the two therapies both rely upon medium frequency oscillation to achieve their results-- one mechanical, and the other electrical). Here's one of the resources that I still had on my laptop from back during that period.

    community.mssociety.org.uk/...

    I remember feeling as though I were standing on a TENS unit when I participated in this therapy (from the standpoint of having repeated, micro-spasms of an involuntary nature).

    Like I said, my anecdotal experience with both this therapy and TENS was very positive, and I wish that I'd been able to continue each.

    I also believe that Terry Wahls used an electrical stimulative therapy as a large component of her reportedly successful program.

    Best,

    -- Christopher

  • Yes, I knew Dr Wahls used electrical stimulation and I'd like to find out more about the kind of therapy she used in addition to her nutrition protocol. I'll checkout the link you offered also.

  • KarenUSA, here are some materials outlining the NEMS program in which Dr. Wahls participated:

    terrywahls.com/wp-content/u...

    You have to search a bit to find it within the loads of diet-related stuff on her website (which, by the way, would be a great starting point to get answers on your second question).

    If you get very serious about the diet program, I think that her website also provides information regarding seminars, and a directory of providers who are trained in the Wahls Protocol.

    Hope that this all helps,

    -- c

  • Thank you for the link. Very helpful to have this information to read and think about.

  • pages 253 to 260 in her book The Wahls Protocol

  • Thanks. I'll read those pages.

  • I started using a TENS unit at PT a couple of years ago for the severe back spasms I get on the right side of my mid-back. I find I don't need as many muscle relaxants when I use it.

  • Hi KarenUSA . I've never heard of electrical stimulation. Can you provide me details about the treatment. I have an appointment with my neurologist this Friday and I think I may want to discuss this with him.

  • The treatment I'm getting is called Rife. From what people are posting, there are several forms of electrical stimulation.

  • Hi Karen - I've read Terry Wahls' book (The Wahls Protocol) which is mostly about diet but e-stem is something she also used in her recovery. I'm very interested in trying it but I don't know where to find someone who does this therapy. I have the name of a PT in town that works with MS folks so I had planned to contact her and see if she uses it. But if I could get my own I'd like that better. Do you need a professional to show you how to use it? I'd love to hear more about your experience with this.

  • I'm going to a person who does the treatment in his home. It sounds rather "new age" as an alternative medicine. I don't know of any units you could get to use at home.

  • Was your PT electrical stim effective long term?

    I used to wear a Bioness L300 for foot drop. I thought it worked and kept the muscles active even though they weren't getting the nerve signals. My new physical medicine doctor put me in an AFO because it helped position my knee better soo wasn'thyperextending it so much.

  • @KarenUSA, I'm sorry but I don't know what an AFO is, is that a brace of some type?

  • An AFO (ankle foot orthosis) is a brace that does indeed flex the foot so you don't trip and stub your toes.

  • I have had electrical stimulation applied by my chiropractor and it seems to help with my lower back issues but I have not noticed any other benefit. Of course the area he is targeting is not really the area most affected by my MS.

    I also purchased a small portable unit that I use sometimes to stimulate specific muscles. It seems to help a little but I think the very low power output of the small unit limits its effectiveness.

    Dr Wahls does does discuss this therapy in her book and I would recommend that to anyone interested.

  • Yes, I'm very interested in what Dr Wahls used for electrical stimulation. I will persue finding this type of treatment.

  • KarenUSA Let me have that medicine tomorrow!!!! I'm 71 and symptoms like yours going down worse every day. Became allergic to Aubagio. Now on Capoxone. Neither hrlped with severe cogitovebisues nor recurring inflammation in lungs. I need tonyo try that med!!!!

  • At our age, it's all about getting symptom relief. Finding treatments that improve our life is a challenge.

  • I have had on knee by PT and it did help withpain

  • hello Karen, I got bioness a month ago, I have right foot drop. it helps me a lot its very expensive 7900, but I don't put a price on my health. GOOD LUCK in the future.

  • My Bioness L300 is several years old and I want to get tuned up and start wearing it again. My AFO fits only in certain shoes and I want to wear other styles of shoes. I always liked how the Bioness unit took care of my foot drop. But it did nothing to prevent me from looking my knee.

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