I went to my first appointment with a new primary care doctor. He is with a brand new healthcare system to the Albuquerque area. The dr explained to me it was established in the late 1990s by about 4 ER docs who had seen too many patients for things their primary care should have been dealing with but hadn't until the patient felt they had to go to the ER for help (my partner was definitely one of those!) So, with this system your primary care is precisely that: your PRIMARY care. He or she knows EVERYTHING about your health! And whatever h/she can't treat or test you for there at the clinic, they will refer you to a specialist who will be in close contact with your primary care so, again he/she will know EVERYTHING that's going on with you, can talk WITH you more indepth about all of it. And that is something I find most attractive about this whole concept--I become fully engaged in my healthcare rather than just being told what to do and when to schedule the follow up!
So it is going back in time in a way. Back to the days when you didn't have a "primary care" but a "famly" doctor or general practitioner and a specialist was rare, not your predominate line up of Dr's. When it was easy to call your Dr, easy to make an appointment to see yor dr--no waiting 3 months. What an idea!
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CrazyCatWom
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every time i go to someone i always remind them that they are to send anything that has gone on or has changed is to be sent on to all of the others for this makes sure all are on the same page ...to many say oh i don't need to do this and i say yes i do and you will help me so much in my care by doing this but they then say your file is so big but i say that is great for all do know what is going on ...i am not living this journey all alone ...i need all of you to help and to watch over me ....hahaha....try to make them feel so important and that we do need them to keep in constant contact...best to all of you to make sure they are all in this together to help you to stay strong during our journey living with MS...for they are the ones that say that is what is wrong with us right....loves to all ...be strong this is your life ...
that's strange for a doctor to discourage you from sharing with all others. for people like us with multiple diagnoses and body systems affected, you'd think that'd be task one! smh
Really! I totally agree. I ask my docs to share with each and if they dont, like for labs and stuff, i send copies of them myself. the only time i have had an issue with that is recently when a new primary care doc did not want to take the copies from me.. I was like WHAT? You said my neuro sent everything BUT these labs and now you say the lab will not release them to you and you wont take the copies from me? i dont get this?
I'd been having a problem with this for the last 4 years, due to my neurologist is/was with the University Hospital ( and that system NEVER shared easily with others, (I actually had to go to their Records office last year to PAY for a copy of my last MRI results that I had to take to my neuro opthamologist--who, ironically, spends two days per week seeing patients AT the University Hospital--, then my cardiologist was with another healthcare system, and my primary care and all my other issues were with yet another healthcare system. They, at least could communicate with each other, just not with the other two. It was always frustrating.
you are super fortunate to have found doctors who all cared and got together to form a solution! boy am i jealous! but hey, faith restored: some doctors actually DO care.
I need in on this asap CrazyCatWom Send me a private message with the details if you don’t mind. I’m in the ABQ area. Is your neuro part of this system too? I felt like a common criminal after visiting my 4th neuro. She sat there fact checking my statements, second guessing my responses to her questions and then she started trembling as she gave me the exam. It was humiliating. Help…lol
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It's been a long time since I chimed in here...
