Optic nerve disorder

[Persevere99]

Hi

My pal has been told, after every test, that he has R eye optic nerve disorder.

However, no treatment has been offered.

Can anyone recommend any supplements that may help the optic nerve please?

Thanks

Persevere

[Kreation88]

The only two I make sure that I have enough of are B12 and Vitamin D. There is no treatment for ON. They typically do steroids if you have a relapse. If that doesn’t help I’ve gotten through plasma exchange and IVIG in addition to Ocrevus. I did lose the sight in my left eye last year. It’s stretching my right eye now but I have an incredible group of drs helping now. Good luck. 🧡🧡🧡🧡

[Persevere99 in reply to Kreation88]

Sorry to hear you’ve lost the sight in the L eye Kreation88

What caused that?

Trust your R eye can be treated

Persevere

[Frances_B]

Has your friend been told exactly what the doctors mean by "optic nerve disorder"? Has he been told by doctors that there is no treatment available for his problem - which is not quite the same as "no treatment being offered". It should not be automatically assumed that they mean the same optic neuritis problem which can be a symptom of MS.

barrowneuro.org/condition/o...

[Persevere99 in reply to Frances_B]

Hi Frances_B

he’s had every test and the ophthalmologist said nothing found, so suggested optic nerve disorder.

So, he’s looking everywhere for an answer.

Thanks

Persevere

[imabirdperson]

When I was younger I had optic neuritis and my doctor gave me a prescription for Prednisone, which I only took for a short time. It helped clear it up.

[Persevere99 in reply to imabirdperson]

Thanks I’ll pass that on

[CatsandCars]

It's awesome that you're trying to help your friend. It doesn't sound like the doctor gave your friend much information that we can weigh in on, though. It might not hurt to get a second opinion, though, and I suggest going with your friend to the appointment to help him or her remember the details. Make a list of questions beforehand, like whether supplements can help or not.

I wish you friend the very best of luck. ❤️

[Persevere99 in reply to CatsandCars]

Thanks for your take on getting a second opinion

[CatsandCars in reply to Persevere99]

If your friend chooses to get a second opinion, they can get the records of the first visit, they won't have to repeat all the tests.

[Loveducks]

Hi

As someone else has said I would get a second opinion. I suddenly got Optic Neuritis just before Covid. I was uncomfortable for a week, then I stepped out of the shower and lost my sight almost completely in my right eye. This led me to having an MRI and they found lesions on the brain and confirmed I had optic neuritis in both eyes. I had to have a VEP test which also suggested MS but never got an official diagnosis as I never went for the lumbar support, although now I realise I have got MS. What I will say, if it wasn't for my GP giving me a high dose of steroids I would have lost my eye sight and so will always be grateful. I am permanently on steroids for asthma and when I try to wean down when I feel the flare up on my eyes I have to increase my steroids and this settles it again. I have just read B12 helps, so increasing my foods containing this and also take a D supplement. There are some conditions that mimic Optic Neuritis, so just telling them they have an optic nerve disorder and not providing any support or medication to settle it isn't very good really. They should at least be referring your pal for an MRI unless they have had one. It's good you are there to help, eye sight is so precious and not something to dismiss. Good luck

[Persevere99 in reply to Loveducks]

Thanks for your points.

Good your GP gave you steroids that helped your eye.

My pal has had MRI and many other tests and, nothing found.

So, they said optic nerve disorder.

[ms23]

My suggestion is to encourage your friend to get the second opinion from a Neuro-ophthalmologist as soon as possible. How very kind of you to help your friend.

[Persevere99 in reply to ms23]

Thanks I’ll tell him that.

[CatsandCars in reply to Persevere99]

I second the neuro opthamologist and kicked myself for not thinking to mention it. They have way more testing capacity and know a lot more about the opthalmology side of things, obviously.

[JSSimp]

I experienced some vision changes in my Right eye pain, redness and draining for about 2-3wks and just completed an appt with a Neuro-ophthalmologist and was confirmed that it isn’t Optic Neuritis just some inflammation that should start easing up after the antibiotic treatment (Thank God) in the event he advised me to continue the Antibiotic EyeDrop that was prescribed by the Ophthalmologist and continue to follow up with them.

Definitely have you friend to get in with the Neuro-ophthalmologist to rule out things. Prayerfully she will get an answer soon to receive the most effective treatment🙏🏾

[Persevere99 in reply to JSSimp]

Thanks I’ll tell my pal what you’ve said.

[JSSimp in reply to Persevere99]

Sounds great. Keep me posted on the final details. Prayerfully it can be resolved soon. What a great friend and everyone need at least one🙏🏾