Hi, all. I'm new to this, I was diagnosed in Sept. 2015. Took 2 years to get a diagnosis . I've been on Avon ex since Dec. 2015. The side affects of the once a week injections are not getting less.
Has anyone on gabapentin figured out what it is supposed to do?
I'm on gabapentin and I have been for years. It's supposed to help with nerve pain, but it doesn't always work on everyone. I know it works for me because when I don't take it my legs hurt like hell and it makes it hard to walk.
I was diagnosed April 13, 2006. my first med was Avonex. I was down 3 out of 7 days from flu like symptoms suffered 2 mild exacerbations in a 6 month period. I am taking a Gilenya capsule orally now with no noticeable side effects after 2+ years.
Hello I am also on Avonex. I had side effects for about 2 months after starting, but they did subside. I am also on gabapentin it helps with the issues I have with the tingling in my feet and legs. I know it is used for different things, so you would need to ask your neuro why it is being prescribed for you.
Thanks all. Everyone is so helpful and informed.
I started on Avonex and for two years got two days of flu like symptoms. Finally got tired of that and got on Copaxone. Copaxone has actually done better for me judging by my MRIs. I can take the sub cue injection much better than the IM one. With Avonex I always felt like I was sticking a tree trunk in my leg.
But to each their own. If the side effects are manageable for you, you can handle the injections and it is working for you then more power to you!
The way I did the injections was I would take Tylenol about an hour before bed time then give the injection right before bed. That seemed to help some. After I got off of it I had someone tell me that they would take the injection at bed time then take a dose of Nyquil and that seemed to help them.
Either of these may help. If it even lessens some of the symptoms it may make it more tolerable for you. Good Luck to you!
Donny uno, it's is Fancy y1959 again. Gabapentin helps to reduce the tingling and nerve pain in my arms and hands. If I forget to take it I do notice a market increase in the tingling and almost pain in my hands especially. Have you ever forgot to take your dose of Gabapentin? If so have you then noticed an increase in the discomfort or pain in a vulnerable spot in your body. Mine is my hands and your MS might affect you somewhere different, like your feet or legs, etc.
You could speak to your doctor about possibly trying a different therapy if the one you have been on for over a year is still causing you difficulties. Lord knows there's lots of therapy out there right now and there's no reason you should not be able to try something else. Speak to your Neurologist.
Not much of a post but I hope it helps. Remember information is our friend and together we are stronger so always come to us with any questions you have. You will get a variety of ideas from a variety of people so that in itself is priceless. Please keep in touch and let us know what new therapy you get on. Remember, you need to be the primary person in charge of your care of you because nobody knows your body like you do! Fight on MS Warrior, fight on!
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New Community Member 
Poor tech help to new member from Admin.
